A Few Good Blogs & Other Resources

The number of Parkinson’s Disease bloggers has grown exponentially since I was diagnosed in 2009. At the time, I could only find two – now there are at least 100 that we know of and more popping up frequently.

Sherri Woodbridge of Parkinson’s Journey also regularly updates her comprehensive list.

In no particular order:

Parkinson’s Diva by Maria de Leon, M.D.

Living Well With Parkinsons by Sheryl Jedlinski, a well written blog with good information about living with PD

Mariette Robijn from the Netherlands offers her often humorous, offbeat posts

The Science of Parkinson’s by Simon Stott – well written, in language the average person can understand.

Parkinson’s Humor by Yuma Bev

It Is What It Is – Zen and Living with Parkinson’s Disease by Tom Eckhardt

A Soft Voice in a Noisy World by Karl Robb – diagnosed at 23, living with PD for over 30 years

Perky Parky by Allison Smith

Tomorrow Edition by Benyamin Stecher

Parking Suns by Bruce Ballard

Tikvah for Parkinson – Debbie Shapiro has created an all-purpose Parkinson’s Center in Jerusalem.

Kathleen Kiddo by Heather Kennedy

Tim Hague Winner of the Great Race Canada. Very inspirational

Parkinson Fit – this is more of a newsletter than a blog with a lot of good information.

Parkinson Secrets Dr. Michael S. Okun, a world authority on PD, co-hosts a blog with Dr. Indu Subramanian with content from a rich variety of bloggers. They provide a forum for others “to inspire faith, plant the seed of hope, help patients to discover their core values, and to share ‘secrets’ that will improve lives…Hope leads to happiness, and happiness will lead to a meaningful life.”

a simple island life – Kai invites you to her lifestyle site where she shares about living well with Parkinson’s and embracing the everyday.

ParkyBoy ParkyBoy is about living with Parkinson’s: helping others with Parkinson’s by talking about it openly, to help make sense of things, and to allow me to express things that rattle around my head.

Who Stole My Dopamine – Emma Stubbs certainly gets the funniest blog award in my book. This young onset mother of teenagers shares her hilarious observations on life with PD

My Journey With Parkinson’s – This is from a newly diagnosed blogger from New Zealand.

Moving and Shaking – A relatively new blog by Andi Brown


A Note To My Readers

I love to see your comments and get your emails as we share our collective experiences. But based on a couple of private questions from some of you, remember, I am just a lay person and a patient like the rest of you. For medical and similar advice, you need to talk to your own doctor

Twitchy Woman

Twitchy Women partners with the Parkinson’s Wellness Fund to ensure we have the resources to offer peer support for women with Parkinson’s.