A Few Good Blogs & Other Resources

The number of Parkinson’s Disease bloggers has grown exponentially since I was diagnosed in 2009. At the time, I could only find two – now there are over 200 that we know of and more popping up frequently.

Sherri Woodbridge of Parkinson’s Journey also regularly updates her comprehensive list.

In no particular order:

Parkinson’s Diva by Maria de Leon, M.D.

Journey with Parkinson’s by Frank Church, PhD, who is a Professor Emeritus in the Department of Pathology and Laboratory Medicine at the University of North Carolina at Chapel Hill (UNC-CH).  Very scholarly posts about Parkinson’s research and about living with the disease.

Mariette Robijn from the Netherlands offers her often humorous, offbeat posts

The Science of Parkinson’s by Simon Stott – well written, in language the average person can understand.

Parkinson’s Humor by Yuma Bev

It Is What It Is – Zen and Living with Parkinson’s Disease by Tom Eckhardt

A Soft Voice in a Noisy World by Karl Robb – diagnosed at 23, living with PD for over 30 years

Perky Parky by Allison Smith

Tomorrow Edition by Benjamin Stecher

Parking Suns by Bruce Ballard

Tikvah for Parkinson – Debbie Shapiro has created an all-purpose Parkinson’s Center in Jerusalem.

Kathleen Kiddo by Heather Kennedy

Tim Hague Winner of the Great Race Canada. Very inspirational

Parkinson Fit – this is more of a newsletter than a blog with a lot of good information.

Parkinson Secrets Dr. Michael S. Okun, a world authority on PD, co-hosts a blog with Dr. Indu Subramanian with content from a rich variety of bloggers. They provide a forum for others “to inspire faith, plant the seed of hope, help patients to discover their core values, and to share ‘secrets’ that will improve lives…Hope leads to happiness, and happiness will lead to a meaningful life.”

a simple island life – Kai invites you to her lifestyle site where she shares about living well with Parkinson’s and embracing the everyday.

ParkyBoy ParkyBoy is about living with Parkinson’s: helping others with Parkinson’s by talking about it openly, to help make sense of things, and to allow me to express things that rattle around my head.

Who Stole My Dopamine – Emma Stubbs certainly gets the funniest blog award in my book. This young onset mother of teenagers shares her hilarious observations on life with PD

My Journey With Parkinson’s – This is from a newly diagnosed blogger from New Zealand.

Moving and Shaking – A relatively new blog by Andi Brown

I’m Sharon

Welcome to Twitchy Woman.

I started Twitchy Woman as a way to exchange ideas and solutions with other whose lives have been affected. It has been recognized by Everyday Health, Healthline, Stanford University and more as one of the top Parkinson’s blogs to follow. Each month I host a free Zoom webinar exclusively for other “Twitchy Women” with Parkinson’s Disease.

Feel free to explore the site – there are goodies on every page to help you live your best life with Parkinson’s Disease.

Let’s connect

A Son’s Journey

A new book by super Parkinson’s Advocate George Ackerman

Just out “A Son’s Journey from Parkinson’s DIsease Caregiver to Advocate. I am looking forward to reading this new book today.

Recent Posts

Sunday Mornings with Twitchy Woman

Sunday May 19, 2024

Time for Ping Pong!

Maureen and Trent will talk about Ping Pong for Good – a program for people with PD.

If you live in Los Angeles and want to participate in the live Ping Pong demo, please contact Sharon for details.

Click here to register.

This program is open to everyone.

Want to practice Ping Pong at home but don’t have room for a Ping Pong table?Click on the image to learn more.

Clinical Trials Corner

LIGHTPD

The University of Rochester and Dr. Ray Dorsey have an interesting new clinical trial in which you participate from the comfort of your own home, doesn’t involve changes to your current meds, and you can earn $500.00!  All interactions with the medical  team will be via Zoom and phone. 

Read more here