Parkinson’s Awareness Month

We need more awareness to break the myths and stereotypes around the condition… It can impact anyone, regardless of age or ethnicity

Manon Day

Today is the start of Parkinson’s Awareness Month. There are many opportunities for you to celebrate – yes celebrate- all things Parkinson’s. You can walk for PD, attend numerous lectures, webinars, classes and more. This is a great time to begin educating others about living with Parkinson’s. You can do a quick search of the internet to find out what is happening near you. Check my last blog post for some great options available to all.

Just in time for Parkinson’s Awareness Month

The Wall Street Journal published an article on March 20: Parkinson’s Disease Can Now Be Detected Through the Skin, breaking the news to us before the Fox Foundation did. A new skin test identifies Parkinson’s by a protein rather than waiting for symptoms that can take years to appear. This has amazing implications for people not yet diagnosed with Parkinson’s Disease. The earlier someone is diagnosed correctly, the sooner they can start disease modifying treatments such as high-intesity exercise and medications, to live longer more productive lives with PD.

A skin test identifies an abnormal protein, shown in orange and gold, inside nerves, pictured in green. People with Parkinson’s disease have the abnormal protein, called alpha-synuclein.  PHOTO: CND LIFE SCIENCES

Parkinson’s Unity Walk

This year the annual Parkinson’s Unity Walk is on Saturday, April 27 in New York’s Central Park. The walk is sponsored by the Michael J Fox Foundation and is celebrating it’s 30th year. Unfortunately, I cannot be there, but if any of you who are members of the Twitchy Woman community are planning to be there, let me know. I will try to connect you with others who will be there so that you can walk together.

100% of the funds raised go directly to Parkinson’s research and public policy priorities

Clinical Trials Corner

Jen has been very busy looking for trials and studies that you can participate in. This one looks very interesting.

LIGHTPD

The University of Rochester and Dr. Ray Dorsey have an interesting new clinical trial in which you participate from the comfort of your own home, doesn’t involve changes to your current meds, and you can earn $500.00!  All interactions with the medical  team will be via Zoom and phone. 

This is a 7 month trial that involves the use of a device that emits a specialized light therapy to determine whether or not it provides a positive impact on both motor and non- motor symptoms.

Ckick here to read more about this trial and others

Twitchy Woman T-shirt Sale

Celebrate Parkinson’s Awareness Month with a new t-shirt from Twitchy Woman

Check out our new tied dyed razorback tank. Look stylish when you go boxing class or play table tennis. Order now to get it in time for the Parkinson’s Unity Walk in New York on April 27.

Sale ends April 12

Gadget of the Week

From Prosource Fit

This was recommended to me by a chiropractor. Sit on it while working on your computer. It will help you sit up straighter. It is good for your core muscles and can be used for a variety of exercises. It comes with a hand-help pump, which I promptly lost after inflating the disc.

You can buy it on Amazon

Have a great week

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I’m Sharon

Welcome to Twitchy Woman.

I started Twitchy Woman as a way to exchange ideas and solutions with other whose lives have been affected. It has been recognized by Everyday Health, Healthline, Stanford University and more as one of the top Parkinson’s blogs to follow. Each month I host a free Zoom webinar exclusively for other “Twitchy Women” with Parkinson’s Disease.

Feel free to explore the site – there are goodies on every page to help you live your best life with Parkinson’s Disease.

Let’s connect

A Son’s Journey

A new book by super Parkinson’s Advocate George Ackerman

Just out “A Son’s Journey from Parkinson’s DIsease Caregiver to Advocate. I am looking forward to reading this new book today.

Recent Posts

Sunday Mornings with Twitchy Woman

Sunday May 19, 2024

Time for Ping Pong!

Maureen and Trent will talk about Ping Pong for Good – a program for people with PD.

If you live in Los Angeles and want to participate in the live Ping Pong demo, please contact Sharon for details.

Click here to register.

This program is open to everyone.

Want to practice Ping Pong at home but don’t have room for a Ping Pong table?Click on the image to learn more.

Clinical Trials Corner

LIGHTPD

The University of Rochester and Dr. Ray Dorsey have an interesting new clinical trial in which you participate from the comfort of your own home, doesn’t involve changes to your current meds, and you can earn $500.00!  All interactions with the medical  team will be via Zoom and phone. 

Read more here