Learn Together, Play Together and Thrive Together
We are living through very interesting times with the Coronavirus totally disrupting our lives. How are you coping with this? Are you finding that you are feeling isolated? What can you do?
Twitchy Women is hosting a series of webinars on Zoom every other Sunday morning at 10 am Pacific Time. Our meetings are always fun, informative and free. And just for Women with PD. To maintain privacy for this group, we ask that care-partners and family members not attend unless an event states that registration is open to all. If you have any questions, please contact email@example.com.
We also have a closed group on FaceBook that you are welcome to join. This is for women with PD only, to maintain privacy. Feel free to post information about any of our speakers, topics you would like to see on Sunday Mornings and more.
November 29, 2020 Twitchy Women Friendsgiving Party
Bring your pie leftovers from Thanksgiving to share virtually with other Women with Parkinson’s Disease. After a brief introduction about exciting new opportunities for Twitchy Women, we will divide up into small groups to get to know one another. You might just find your Parkinson’s BFF today. No agenda, just lots of fun.
Register here to join in the party
December 13, 2020 Music Mends Minds
Celebrate the holidays with us at a musical Sunday with Music Mends Minds. Carol Rosenstein, Founder & Executive Director–will talk about how she explored the amazing prospect of music as medicine for the mind and created musical support groups for patients with Alzheimer’s, dementia, Parkinson’s, traumatic brain injury, stroke, and PTSD. Be prepared to make a lot of music with Carol, with singing and musical instruments. You will receive information about what you need after you register for this Holiday event.
Your Support is Appreciated
Please support our presenters when possible. They have much to offer those of us with Parkinson’s and have generously donated their time and knowledge to be with us on Sunday mornings. Many are small non-profits that have had to change how they do business because of the current situation.
Do you have ideas for future sessions?
Do you know any speakers or programs that you want to recommend? Please contact me directly at twitchywoman18@gmailcom
Haven’t used Zoom before? Try it out at least a few hours before and the program will walk you through it. You will be asked to enter the meeting ID which will take you to our meeting. You will receive the meeting ID information once you register. Please note that the ID is different for each session.
November 15, 2020
Do you know if you have one of the gene mutations that can cause PD? What is your risk if you test positive for one of the genes? Do genetic forms of PD look different for women than for men? Denise Coley (PwP) and Ana Naito (researcher) will talk about the Parkinson’s Foundation initiative that offers genetic testing and genetic counseling at no cost for people with Parkinson’s disease (PD). Watch the recording here
November 1, 2020
Do your changing hormones wreak havoc on your meds?
In this meeting, we explored how changing levels of Estrogen can interfere with our Parkinson’s medications. A panel of three women talked about their experiences and then led small breakout group discussions. Recording not available.
October 18, 2020 Linda K. Olson
Linda K. Olson lost both of her legs and one arm when the car she was traveling in was hit by a train. Then 5 years ago, was diagnosed with Parkinson’s. You can watch her amazing story as she told to us it by clicking here
October 4, 2020 Cycling with Jay Alberts, PhD
Jay Alberts, PhD, talks about the benefits of forced exercise for People with Parkinson’s and about his current study with Peloton bicycles.
You can view his talk here
March 22, 2020 Kristie Scott – Life Coach, Woman with PD and creator of Evolve Cards
April 3, 2020 Maria de Leon – Parkinson’s Diva
Are you a Parkinson’s Diva? Check out Maria’s books below and learn some fun tips just for women with PD. Enjoy!
Parkinson’s Diva (the book)
April 19, 2020 Jennifer Parkinson Iljin – Neuro Boxing
Watch her presentation here
May 3, 2020 Kat Hill – Sketchbook Journaling
May 17, 2020 Taiko Drumming
Watch the recording with Sydney, Naomi and Vivian
- Los Angeles Taiko Institute/Asano Taiko US
- Email: firstname.lastname@example.org
- San Jose Taiko: Ongoing class for individuals with PD on Tuesdays 10-11am, donation-based
- Email: email@example.com
- Taiko Community Alliance
Online Taiko tutorials:
- Taiko for Parkinson’s with Reid Taguchi of San Fernando Valley Taiko (Naomi’s teacher)
- Body Bayashi video with ManMan Mui (instructor at LATI)
May 31, 2020 PD-Connect
So much fun exercising with Lisa and SteF. For more information about PD-Connect and to take their virtual exercise classes go to http://pd-connect.org/
June 14, 2020 A Morning with Dr. Laurie Mischley
Watch the recording here of the very informative session with Dr. Laurie Mischley.
- Summary of CAM Care PD research findings to date. To participate in the CAM Care PD study
- Online Parkinson’s School
- Dog detection of parkinsonism
- Misc. stuff:
- My clinic, Seattle Integrative Medicine
- Sample of supplements I trust
June 28, 2020 Living well with PD in Covid-19 era with Dr. Indu Subramanian
Movement Disorders Specialist Indu Subramanian, MD, UCLA and the VA, talked about living well with PD in Covid-19 era including the importance of social connections, mindfulness and yoga to alleviate some of the stress we are all feeling during this unsettling time. Watch the recording of session.
July 14, 2020 Dancing Through Parkinson’
July 26, 2020 Kinetics
Sue Wylie, writer, producer and Person with Parkinson’s, joined us for a discussion about her film, Kinetics. You can still watch the 50 minute film Kinetics: The Desire to Move at home for a limited time.
August 9, 2020 Claire McLean PT, DPT, NCS
We had an amazing PWR! exercise session with super PT Claire McLean. She has shared information about her online classes and membership.
If there are any women in Orange County who would be interested in exercising with Claire in person (when that is a thing again!) or coming in for an assessment you can contact Claire directly or check out her website: https://www.roguept.com
For online membership: http://www.rogueinmotion.com
A list of classes in the video library: https://rogueinmotion.vhx.tv/browse
Current livestream schedule: https://www.roguept.com/rogue-online-class-schedule
Free videos for both information and exercise: https://rogueinmotion.vhx.tv/free-exercise-class-videos?_ga=2.190633325.713749271.1596472465-885518602.1593818890
August 23, 2020 Ending Parkinson’s Disease with Dr. Ray Dorsey
This was an amazing information session with a call to action. For those of you who missed it, make sure that you watch the entire video and then take action. Sign up to be PD Avenger. Send an email to EPA Administrator Andrew Wheeler asking him to ban Paraquat in the US. And sign up for future research studies with Dr. Dorsey.
Here is the video recording of our session: Ending Parkinson’s x Twitchy Woman FINAL 082320…
Ending Parkinson’s Disease
Buy the book on Amazon for $17.89 (and write a review!): https://www.amazon.com/Ending-Parkinsons-Disease-Prescription-Action/dp/1541724526
If you can’t afford it, email us and we will send you a free copy (and ask you to write a review!): firstname.lastname@example.org
Sign up for our email list to get notified about upcoming live webcasts, and watch past webcasts: https://endingpd.org/live
Ready to end Parkinson’s disease? Sign the PACT to Prevent, Advocate, Care, and Treat Parkinson’s: https://endingpd.org/resources
Other Actions You Can Take
Email EPA Administrator Andrew Wheeler (email@example.com) or call him at 202-564-4700
Sign up to get notified about future research studies from Dr. Dorsey’s team at the University of Rochester: http://neurologyregistry.org, and email firstname.lastname@example.org if you have any questions about signing up.
September 13 Yoga with Christiana Lewis
“If you can breathe you can do yoga” Email: email@example.com C 949.541.1583 www.colorfulsouls.com