a Parkinson’s Wellness Fund Partner Community
Learn Together, Play Together and Thrive Together
We are living through very interesting times with the Corona virus totally disrupting our lives. How are you coping with this? Are you finding that you are feeling isolated? What can you do?
Twitchy Woman is hosting a series of webinars on Zoom about twice a month on Sunday mornings at 10 am Pacific Time (1 PM Eastern). Our meetings are always fun, informative and free. And just for Women with PD. To maintain privacy for this group, we ask that care-partners and family members not attend unless an event states that registration is open to all. If you have any questions, please contact firstname.lastname@example.org. Registration is required for each webinar. The passcode is always Twitchy.
We also have a closed group on FaceBook that you are welcome to join. This is for women with PD only, to maintain privacy. Feel free to post information about any of our speakers, topics you would like to see on Sunday Mornings and more.
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January 15, 2023 Palliative Care with Kirk Hall
What is Palliative Care? How is it different than Hospice? Kirk Hall is a well known authority on Palliative Care and will be talking about this very important type of care for People with Parkinson’s. Click here to register
January 29, 2023 Judi Spencer and the WPC Choir
Do you love to sing?
Learn about the WPC Choir and how you can sing with them, even if you are not going to Barcelona!
Please support our presenters when possible
They have much to offer those of us with Parkinson’s and have generously donated their time and knowledge to be with us on Sunday mornings. Many are small non-profits that have had to change how they do business because of the current situation.
Do you have ideas for future sessions?
Do you know any speakers or programs that you want to recommend? Please contact me directly at twitchywoman18@gmailcom
Haven’t used Zoom before? Try it out at least a few hours before and the program will walk you through it. You will be asked to enter the meeting ID which will take you to our meeting. You will receive the meeting ID information once you register. Please note that the ID is different for each session.
You can view all of the recordings on our Youtube Channel
December 4, 2022 Rock Steady Boxing with Dean Moskowitz
Get ready to fight Parkinson’s. Learn the principles of Rock Steady Boxing and have a lot of fun exercising in this interactive workshop. Watch the recording here
November 13, 2022 Kat Hill and Nancy Peate
Kat and Nancy talked about their new book Being Well with Chronic Illness: A Guide to Joy & Resilience with Your Diagnosis
Kristie Scott hosted this meeting. You can watch it here
October 16, 2022 Parkinson’s Across America
Jim Morgan and Scott Rider, both People with Parkinson’s, are going across the country for one week a month, talking to and interviewing other People with Parkinson’s. They plan to create a documentary style film for the Parkinson’s Foundation that offerers hope and encouragement. Watch the recording here.
September 18, 2022 PWR! Moves with Pandora Larsen
PWR!Moves are the core of our Parkinson Disease specific functional exercise and physical therapy programs. The Basic 4 PWR!Moves are designed to each target a skill known to deteriorate in people with Parkinson disease, which often lead to loss of mobility and function. The PWR!Moves can be practiced in multiple positions, made progressively more physically and cognitively challenging, and be used differently to target each person’s unique symptoms individually. PWR!Moves help you mitigate symptoms and rebuild functionality, no matter how you incorporate them into your life.
View the recording here
August 21, 2022: Improv for Parkinson’s with The Tightrope Theatre
Learn how Improv will help exercise your brain with PD while having a lot of fun.
Parkinson’s Society BC – Laughter is the Best Medicine – 6 week course – $30 CAD*:
UBC Centre for Brain Wellness – drop in classes – Tuesdays and Fridays (registration not yet open):
View the recording here
November 20, 2022 Sydney Collin: Balance and Me, with PD
Exploring how balance can change with Parkinson’s Disease and what we can do about it. Treatment options and assistive devices that can be used to keep your balance were discussed. Watch the recording here
October 30, 2022 Stacey Macaluso, Mission PD and The National Plan to End Parkinson’s Act
Stacey Macaluso, trainer and founder of Mission PD, lead us through some PWR! exercises that are the core of the Mission PD program. Stacey also shared her passion for advocacy for people with Parkinson’s. You will learn more about the National Plan to End Parkinson’s Act and the postcard that she has developed for you to use to contact your congressperson.
Susan Lehman hosted this meeting. Watch the recording here
October 2, 2022. Shilpa Rao and Richelle Flanagan on Women and PD
Shilpa Rao, a graduate student in Dr. Ignacio Mata’s lab at Cleveland Clinic, talked about her work looking at women-specific health experiences and PD severity. The analysis in this work will allow women to better identify sex-specific factors that may impact their PD severity, as many studies look at only risk factors for PD.
You can take Shilpa’ survey here.
Richelle Flanagan also joined us to talk about My Moves Matter an app she is developing for women with PD.
Watch the recording here
September 11, 2022 Creative Writing Workshop with Steven Greene
You will learn new ways to use writing to spur your creativity and explore your journey with Parkinson’s Disease in this participatory workshop. Steve will provide proven techniques to help you get started on a daily journal, a poem or a written record of your experience with Parkinson’s. Attendees will receive a worksheet and exercises to explore on their own following the workshop.
Click here to watch the recording
July 24, 2022: Smile Through Art
Through creativity, cognition, and movement our Smile Through Art® Workshops target specific areas of the Parkinson’s population. Those living with Parkinson’s disease are able to find relief in their symptoms, including a heightened level of mood, through attending our programming.
To learn more please visit www.creativeneurology.com.
Recording not available
June 5, 2022: the I Am! poem workshop
August 7, 2022: Learn about the WPC with Eli Pollard
With Ashley Asti from PMD Alliance. When you’re faced with a chronic and degenerative disease, it can feel like you become the diagnosis. In this I Am! Poem Workshop in collaboration with PMD Alliance, gain the tools to tap into the rich tapestry of who you are beyond a diagnosis and to fan the flames of connection and creativity. Watch the recording here.
This unique conference attracts medical professionals, researchers and people with Parkinson’s from around the world. What makes this conference different is that anyone can attend any session, no matter what their credentials are. PwP’s are welcomed with open arms by the leaders in the Parkinson’s world. Find out how you can participate in the next WPC in Barcelona July 4-7, 2023. Recording coming soon
April 24, 2022: Indu Subramanian MD and Adrienne Keener MD in conversation
Learn about the groundbreaking study on the Unmet Needs of Women with Parkinson’s that has been shaking up the PD world since it’s publication in January, 2022. You can read about their paper here.
March 27, 2022: Stacey Macaluso
We exercised with Stacey as she demonstrated several different types of exercise programs. She talked about how to find the right exercise program for you. Watch the recording here
Please note that Stacey is now with Mission PD where she offers many of the same programs.
February 27, 2022 Debra Magid and Zack Grant
Several years ago, Zack Grant made a documentary, Shake with Me, about his mother’s journey with Parkinson’s and the portraits she has been painting since her diagnosis. Watch the film at https://vimeo.com/273256248. You can view the recording of the meeting here
January 23, 2022 Daniel Corcos, PhD
Dr. Corcos, a professor of Physical Therapy at Northwestern University, is a well known authority on Exercise and Parkinson’s. Join us to hear about the latest research from this engaging speaker.
You can watch the recording here
December 12: LSVT and the Google Project
LSVT Global has partnered with Google on an exciting research project called Project Euphonia to help improve automatic speech recognition software for people with speech disorders. These disorders may make using devices like Google Home, The Nest and other Smart devices, Siri, Alexa, or speech-to-text frustrating. To do this, we need samples of disordered speech to train the system. LSVT Global is recruiting people with speech disorders to help! Watch the recording here
December 5, Laura Russell
Laura spoke about her latest book, Exquisite Warriors, which celebrates 26 women battling Parkinson’s Disease with grace and dignity. This limited-edition artist book is an “exquisite corpse” structure — an interactive children’s book that was once a Surrealist game where the pages are split into body parts. In turning the pages the viewer changes the visual sequence of the body, creating a variety of permutations of heads, torsos and legs. As if we could swap out our own body parts when they fail us. Watch the video here
November 14, 2021 Rx Ballroom Dance
Erin and Trisha, professional ballroom dancers, guide us through a curriculum that uses the rhythms of the ballroom dance styles to engage both the body and mind.”
Click here to watch the recording
Sunday, October 3, 2021 Creativity and Parkinson’s with Amy Carlson
It is said that people with Parkinson’s often become more creative. Amy Carlson takes us along with Alice down the Rabbit Hole to explore creativity. You can watch it on Youtube here
Sunday, September 19, 2021 What should you know about participating in clinical trials?
Do you know the difference between a Phase 1 and Phase 3 clinical trial? Why do most trials fail? Lauren Simmons and Susan Lehman shared their experiences with clinical trials. Dr. Andrew Siderowf, MDS and Ellen Indik from the Penn Movement Disorders clinic spoke about what goes into clinical trials, recruitment and more. Watch the recording here
July 11 and July 25 So Many Parkinson’s Organizations – So Little Time
There are a lot of Parkinson’s Organizations competing for our time and our donations. Learn about 8 different Parkinson’s organizations and what they have to offer you as a person with PD.
Watch the July 11 video here.
Watch the July 25 video here
June 13, 2021 Discovering Neurographic Art with Lorraine Wilson
We had a lot of fun creating art with Lorraine Wilson. The technique that she used can be done by anyone. All you need is paper, pens and colored pencils or watercolors.
You can watch the Youtube video here
April 25, 2021 Combat Micrographia and Improve Your Handwriting
One of the hallmarks of Parkinson’s is Micrographia (small handwriting). Saba Shahid, from Creative Neurology led us through a workshop specifically designed for People with Parkinson’s to improve their handwriting. Learn more about her from the poster or go to her website: http://www.smilethroughart.com
Recording unavailable at this time.
March 21, 2021 PARTE’ with Twitchy Woman as We Celebrate One Year!
Twitchy Woman celebrated 1 year on Zoom with Stephanie Goodman from Parkinson’s Art of Expression (PARTE’) You can view the recording here
February 21, 2021 Dr. Soania Mathur
Dr. Mathur is a family physician living outside of Toronto, Canada who had to resign her practice following a diagnosis of Young Onset Parkinson’s Disease at age 27. Find out more at her blog UnshakeableMD
You can watch the recording on Youtube here
January 24, 2021 Writing your Narrative
Everyone has a story. We may think our personal stories are nothing special, boring, blah. Yet if we are brave enough to tell a story, we find people are fascinated by our lives…even what we think is mundane. Carol Clupny, author of The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease , Linda K Olson, author of Gone, and Sharon Krischer discussed how they have shared their PD stories. You might even hear a good story or two. You can watch the recording on YouTube
November 15, 2020 PD GENEration
Do you know if you have one of the gene mutations that can cause PD? What is your risk if you test positive for one of the genes? Do genetic forms of PD look different for women than for men? Denise Coley (PwP) and Ana Naito (researcher) will talk about the Parkinson’s Foundation initiative that offers genetic testing and genetic counseling at no cost for people with Parkinson’s disease (PD). Watch the recording here
November 1, 2020 Do your changing hormones wreak havoc on your meds?
We explored how changing levels of Estrogen can interfere with our Parkinson’s medications. A panel of three women talked about their experiences and then led small breakout group discussions. Recording not available.
October 4, 2020 Cycling with Jay Alberts, PhD
Jay Alberts, PhD, talks about the benefits of forced exercise for People with Parkinson’s and about his current study with Peloton bicycles.
You can view his talk here
August 9, 2020 Claire McLean PT, DPT, NCS
We had an amazing PWR! exercise session with super PT Claire McLean. She has shared information about her online classes and membership.If there are any women in Orange County who would be interested in exercising with Claire in person (when that is a thing again!) or coming in for an assessment you can contact Claire directly or check out her website: https://www.roguept.com
For online membership: http://www.rogueinmotion.com
July 14, 2020 Dancing Through Parkinson’s
Linda Berghoff had us dancing to the music. So much fun! Learn more at Invertigo Dance – Dancing Through Parkinson’s
June 14, 2020 A Morning with Dr. Laurie Mischley
Laurie Mischley always inspires us. Watch the recording here of the very informative session.
- Summary of CAM Care PD research findings to date. Participate in the CAM Care PD study
- Online Parkinson’s School
- Dog detection of parkinsonism
- Misc. stuff:
- My clinic, Seattle Integrative Medicine
- Sample of supplements I trust
May 17, 2020 Taiko Drumming
Taiko Drumming is great exercise. Watch the recording with Sydney, Naomi and Vivian
- Los Angeles Taiko Institute/Asano Taiko US
- Email: email@example.com
- San Jose Taiko: Ongoing class for individuals with PD on Tuesdays 10-11am, donation-based
- Email: firstname.lastname@example.org
- Taiko Community Alliance
April 19, 2020 Jennifer Parkinson Iljin – Neuro Boxing
April 3, 2020 Maria de Leon – Parkinson’s Diva
Are you a Parkinson’s Diva? Check out Maria’s books below and learn some fun tips just for women with PD. Enjoy!
Parkinson’s Diva (the book)
June 26, 2022: “What a Load of Balls” with Sue Wylie
May 22, 2022 Ignacio Mata PhD
Dr. Mata, from the Cleveland Clinic, spoke about the Genetics of PD and what it means for precision medicine and treating Parkinson’s in the near future.
You can watch the recording here
April 10, 2022: LSVT Big and Loud
Lorraine Ramig, PhD, CCC-SLP, CSO of LSVT Global and Jennifer Tuccitto, MPT, GCS, Director of Innovation and Communications for LSVT Global speak about LSVT programs for people with Parkinson’s. Watch the recording here
March 20, 2022 Laugh with Twitchy Women + Celebrating 2 Years of Sunday Mornings together!
We explored the healing qualities of laughter, learn to make fun of Parkinson’s disease and practice laughing at the most embarrassing issues.
Watch the recording here
February 13, 2022 Bradley McDaniels PhD
How can you find meaning in your life when you have Parkinson’s Disease? Dr. McDaniels discussed this important subject and the research he has done.
Watch the video recording here
January 16, 2022 Driving with Parkinson’s Disease
How do you know when to turn in your car keys? How did you make the decision to give up driving? Was the decision made for you by others? If so, how did you feel? Recording not available for this meeting.
November 7, Terri Bryant, Founder of Guide Beauty
Terri Bryant spoke about her journey with Parkinson’s which led her to develop a line of cosmetics and tools for makeup application that are easy to use, even with a tremor. Watch the recording here
October 24, 2021 Qi Gong with Bianca Molle
QiGong is a system of coordinated body-posture and movement, breathing, and meditation used for the purposes of health, spirituality, and martial-arts training. Watch it on Youtube here
August 15 Ping Pong for Good
Experts agree that enhancing brain health is one of the most significant advantages of playing ping pong because it triggers neurological pathways throughout the body. The speed, projection and spins result in sharpened mental acuity.
Watch the recording here
June 27, 2021 Hormones and Parkinson’s
Richelle Flanagan, co-founder of the Women’s Parkinson’s Project, Caitlin Nagy, woman with YOPD, and Roberta Marongiu, Ph.D., Assistant Professor of Neuroscience, Weill Cornell Medicine, will talk about the effects of hormones on Women with Parkinson’s Disease. Watch the recording here
May 16, 2021 Twitchy Woman Peer to Peer Mentoring Program
Are you newly diagnosed and looking for someone to talk to about Parkinson’s? Or have you been living with PD for a while and want to help someone else on their journey with Parkinson’s? Watch the recording of this meeting featuring Susan Lehman, Carole Ries, Debra Brewer, Lisa Rozacky and LeeAnn Cochran
April 18, 2021 The Perky Parkie Allison Smith
Allison told of her journey with Young Onset Parkinson’s Disease, her DBS surgery right after diagnosis, advocacy and more. You can watch the recording here
March 7, 2021 Alone in a Crowd
Conquering Loneliness and Isolation in These Times of Spiritual Distress and Parkinson’s Symptoms. Research shows that loneliness and social isolation can increase severity of Parkinson’s symptoms. But is the answer to simply surround ourselves with more people or more zoom calls? Rev. Sharon Burniston, MDiv, BCC-PCHAC, CT, a palliative care chaplain will shared insights into how spiritual distress can lead to feelings of loneliness, even when we are surrounded by caring friends and family.
Watch the recording on Youtube
February 7 2021 Urban Poling
Mandy Shintani, Occupational Therapist and gerontologist from Vancouver, Canada, who developed the ACTIVATOR trekking poles for Parkinson’s disease, spoke about the research and the benefits of poling for PD. For more information go to http://www.urbanpoling.com. You can view the recording on YouTube
January 10, 2021 Deep Brain Stimulation: Is it in your future?
At this amazing session, 4 women shared their experiences with DBS surgery and the outcomes. You can watch their emotional, brutally honest presentations on Youtube
December 13, 2020 Music Mends Minds
We had a wonderful musical Sunday with Music Mends Minds. Carol Rosenstein, Founder & Executive Director–spoke about how she explored the amazing prospect of music as medicine for the mind and created musical support groups for patients with Alzheimer’s, dementia, Parkinson’s, traumatic brain injury, stroke, and PTSD. You can view the recording here
October 18, 2020 Linda K. Olson
Linda K. Olson lost both of her legs and one arm when the car she was traveling in was hit by a train. Then 5 years ago, was diagnosed with Parkinson’s. You can watch her amazing story as she told to us it by clicking here
September 13 Yoga with Christiana Lewis
August 23, 2020 Ending Parkinson’s Disease with Dr. Ray Dorsey
This was an amazing information session with a call to action. For those of you who missed it, make sure that you watch the entire video and then take action. Sign up to be PD Avenger. Send an email to EPA Administrator Andrew Wheeler asking him to ban Paraquat in the US. And sign up for future research studies with Dr. Dorsey.
July 26, 2020 Kinetics
Sue Wylie, writer, producer and Person with Parkinson’s, joined us for a discussion about her film, Kinetics. Watch this session on Youtube
https://www.kineticsfilm.com. Email Sue at DT2Productions@outlook.com for more information.
June 28, 2020 Living well with PD in Covid-19 era with Dr. Indu Subramanian
Movement Disorders Specialist Indu Subramanian, MD, UCLA and the VA, talked about living well with PD in Covid-19 era including the importance of social connections, mindfulness and yoga to alleviate some of the stress we are all feeling during this unsettling time. Watch the recording of session.
May 31, 2020 PD-Connect
So much fun exercising with Lisa and SteF. For more information about PD-Connect and to take their virtual exercise classes go to http://pd-connect.org/
May 3, 2020 Kat Hill – Sketchbook Journaling
We learned to find our inner journalist with Kat.
Sorry, no video.
March 22, 2020 Kristie Scott – Life Coach, Woman with PD and creator of Evolve Cards
Our very first program was with Kristie Scott, a life coach and woman with Parkinson’s. Most of Kristie’s information is on her website https://www.evolvewithkristie.com/ Here is a link to her Resource List
Twitchy Woman T-shirts Available
We still have a few t-shirts if you missed the sale. Short sleeve v-neck tee’s, various sizes and a few tank tops are still available. Contact Sharon directly if you are interested.
Your Support is appreciated
All Twitchy Women programs are free to all who participate. However, they are not without cost. It takes resources to continue our work and we cannot do it without your help. Through our partnership with the Parkinson‘s Wellness Fund, those who want to provide support can do so. You can support Twitchy Woman by clicking here. Thank you to all of you who have contributed. It is really appreciated.