More Parkinson’s Stories

Last week, in response to Dr. Michael Okun’s statement urging us to tell our stories, I published one story written by Linda (last name withheld). Immediately, I started getting emails, texts and even handwritten letters sent by mail, telling me how reading Linda’s story had a very powerful effect on them.

Today, I am featuring another story, this time done in Haiku, that I hope you will enjoy as much. Please consider sending your story to me so that I can share it. It can be prose, poetry, a cartoon, song lyrics, anything that you want to share about living with PD.

Parkinku

My Parkinson’s Story by Mimi Dollinger

I first heard the word “haiku” in elementary school. Three-line poems, with 5 syl-la-bles (not words) on the first line, 7 syllables on the second, and 5 syllables on the third. A poetry style that originated in Japan and said something about flowers or frogs or something in nature.

Then fifty years later — four years after my diagnosis of late-onset Parkinson’s Disease — I learned that haiku could also be about people, and specifically about people with Parkinson’s Disease. You can read the rest of the backstory here

I can’t end my story without sharing a few examples of my parkinku.  I hope parkinku will have a place in your journey with PD.

my Forest Gump

box of chocolates had

Parkinson’s inside

hand tremor adds

extra vowels to every

word I typeeeee

I can fall asleep

middle of meal, movie, chat –

anywhere but bed


Laugh at my Mom

My friend Naomi Estolas took writing her story even further. She actually published a book which came out last week. In I Laugh at My Mom Who Has Parkinson’s Disease, Naomi writes about her journey with PD with some help from her daughter. Each short chapter in this fun little book of short stories inspired by her daughter describes some aspect of PD and how Naomi coped with it. From sippy cups for adults to challenges driving with PD, no subject is taboo.

Book cover for 'I Laugh at My Mom Who Has Parkinson's Disease' by Naomi Estolas, featuring colorful illustrations of a laughing girl and a woman humorously lying on the ground.

Order your t-shirt before the sale disappears!

We have 2 great designs for you – but if you don’t act fast, they will disappear until next winter.

A plain white background with a subtle gradient effect.
$35 each. Order here by April 1 to get in time for the WPC

Finally, at our meeting the other day about attending the WPC,

someone asked where she could find a refrigerated travel thermos for her Vayalev pump meds, which must be kept cold. We found this one on Amazon.

Have a great week

I’m Sharon

Welcome to Twitchy Woman.

I started Twitchy Woman as a way to exchange ideas and solutions with other whose lives have been affected. It has been recognized by Everyday Health, Healthline, Stanford University and more as one of the top Parkinson’s blogs to follow.

Feel free to explore the site – there are goodies on every page to help you live your best life with Parkinson’s Disease.


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Clinical Trials Corner

SEPTEMBER 2025

I’ve been hesitant to feature new clinical trials as a few that I had on my list to include in future columns have either been removed from the site or marked as withdrawn. Keeping my fingers crossed that the trials I feature continue to recruit and maintain their funding. Click here for the rest of the report from Jen


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