Last week, in response to Dr. Michael Okun’s statement urging us to tell our stories, I published one story written by Linda (last name withheld). Immediately, I started getting emails, texts and even handwritten letters sent by mail, telling me how reading Linda’s story had a very powerful effect on them.
Today, I am featuring another story, this time done in Haiku, that I hope you will enjoy as much. Please consider sending your story to me so that I can share it. It can be prose, poetry, a cartoon, song lyrics, anything that you want to share about living with PD.
Parkinku
My Parkinson’s Story by Mimi Dollinger
I first heard the word “haiku” in elementary school. Three-line poems, with 5 syl-la-bles (not words) on the first line, 7 syllables on the second, and 5 syllables on the third. A poetry style that originated in Japan and said something about flowers or frogs or something in nature.
Then fifty years later — four years after my diagnosis of late-onset Parkinson’s Disease — I learned that haiku could also be about people, and specifically about people with Parkinson’s Disease. You can read the rest of the backstory here
I can’t end my story without sharing a few examples of my parkinku. I hope parkinku will have a place in your journey with PD.
my Forest Gump
box of chocolates had
Parkinson’s inside
hand tremor adds
extra vowels to every
word I typeeeee
I can fall asleep
middle of meal, movie, chat –
anywhere but bed
Laugh at my Mom
My friend Naomi Estolas took writing her story even further. She actually published a book which came out last week. In I Laugh at My Mom Who Has Parkinson’s Disease, Naomi writes about her journey with PD with some help from her daughter. Each short chapter in this fun little book of short stories inspired by her daughter describes some aspect of PD and how Naomi coped with it. From sippy cups for adults to challenges driving with PD, no subject is taboo.

Order your t-shirt before the sale disappears!
We have 2 great designs for you – but if you don’t act fast, they will disappear until next winter.



Finally, at our meeting the other day about attending the WPC,
someone asked where she could find a refrigerated travel thermos for her Vayalev pump meds, which must be kept cold. We found this one on Amazon.

Have a great week




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