What's So Funny About Parkinson's? - Twitchy Woman: My Adventures with Parkinson's

What’s So Funny About Parkinson’s?

What instructions are not needed on Parkinson’s Medicine?

Shake well before use.

People with Parkinson’s have been using humor for years to help cope with the disease. Join us as we celebrate the lighter side of PD on Sunday, November 9, at a fundraiser for Twitchy Woman Scholarships to the 7th World Parkinson Congress in May.

Event flyer for 'What's So Funny About Parkinson's?' featuring details about a comedy and storytelling night to raise funds for women attending the 7th World Parkinson Conference.

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Wow! Amazing Progress in Gene Therapy Treatments

from Science

“A gene therapy appears to be the first treatment to slow the progression of Huntington disease, an inherited, fatal neurological disorder, according to a company that announced results from a small clinical trial today. UniQure reported in a press release that its drug reduced the progression of Huntington symptoms by 75% over 3 years in 12 people who had received it versus a comparison group.”

What does this mean for those of us with Parkinson’s? Since Huntington Disease is also a neurological disorder, these results may influence the current gene therapy research for Parkinson’s according to Walid Abi-Saab, M.D., chief medical officer of uniQure. He says: “These findings reinforce our conviction that AMT-130 has the potential to fundamentally transform the treatment landscape for Huntington’s disease, while also providing important evidence supporting one-time, precision-delivered gene therapies for the treatment of neurological disorders.

Read more about this groundbreaking study here

Gene therapy for Parkinson’s is not far behind

From Parkinson’s News Today: First trial group gets commercial formulation of Parkinson’s therapy
In a trial milestone, participants in the third patient group of the ASPIRO Phase 1/2a study (NCT06344026) are now receiving the commercial formulation of ANPD001, Aspen Neuroscience’s cell therapy candidate for Parkinson’s disease.

While participants in earlier groups also received ANPD001, the third group is the only one thus far to receive the formulation Aspen hopes to commercialize if the treatment is approved. The company said this formulation was created with scalable, reliable manufacturing in mind. Continue reading here.

Speaking of Clinical Trials

Jen Heath has some new trials for you to check out. Go to Clinical Trials Corner . Jen has given us a lot of material, so make sure that you read all of it.

Have a great week!

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I’m Sharon

Welcome to Twitchy Woman.

I started Twitchy Woman as a way to exchange ideas and solutions with other whose lives have been affected. It has been recognized by Everyday Health, Healthline, Stanford University and more as one of the top Parkinson’s blogs to follow.

Feel free to explore the site – there are goodies on every page to help you live your best life with Parkinson’s Disease.

Twitchy Woman named to Top 50 Parkinson Influencer list

Thank you Feedspot for recognizing Twitchy Woman on this new list. Check it out here. Twitchy Woman is #44. I am amazed to be included with so many young onset people who actually know how to use Instagram and TikTok!

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Sunday Mornings with Twitchy Women

Sunday, May 31 @ 1:00 PM ET

Kristine Meldrum returns to talk about her new book for trainers. How to Build a PD Exercise Cocktail Plan: A Professional’s Companion Guidebook to Parkinson’s: How to Reduce Symptoms Through Exercise. Kristine has generously donated 6 books to give away that day (3 of each). Please encourage your trainers/physical therapists to join us for this important meeting.

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The latest video from Sunday Mornings with Twitchy Woman

Clinical Trials Corner

SEPTEMBER 2025

I’ve been hesitant to feature new clinical trials as a few that I had on my list to include in future columns have either been removed from the site or marked as withdrawn. Keeping my fingers crossed that the trials I feature continue to recruit and maintain their funding. Click here for the rest of the report from Jen

Thank You!

All Twitchy Women programs are free to all who participate. However, they are not without cost. It takes resources to continue our work and we cannot do it without your help. Through our partnership with the Parkinson’s Wellness Fund, those who want to provide support can do so. Thank you to all of you who have contributed. It is really appreciated.