A cornerstone of good, personalised care for Parkinson’s starts with providing access to timely education and allowing the patient to participate in their own health decisions.
Important!
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Wow, it is hard to believe that it has been a year since so many of us were together in Barcelona for the World Parkinson Congress. We are already looking forward to the next WPC in Phoenix, Arizona in two years. Much has happened since then in the Parkinson’s world. The nine women who received grants from Twitchy Woman have all been busy sharing what they learned at the WPC. I want to share this article by Michele Callisaya from Australia, one of our grant recepients, about being YOPD and female. She was the co-author with dentist Shafaq Hussain-Ali in the article that was just published in Health Expectations
The Parkinson’s Puzzle Box
Introduction:
Have you ever seen a puzzle box? It is a seemingly simplewooden box that fits in the palm of your hand, but inside it contains an intricate pattern of interlocking components. The puzzle is to work out how those components piece together, so you can open it up to reveal the secrets within. There will be slots, catches and notches, all of which will need to be ordered precisely to create the perfect alignment before the puzzle issolved. In some ways, the human body is similar, with multiple parts that need to be synchronised and ordered to allow it to properly function. With this essay, we aim to challenge the way problems are perceived, encouraging the reader to think about how apparently simple symptoms sometimes signal unexpected hidden complexities and the need to think about new ways to solve the deceptively simple ‘puzzle box’.
The Diagnostic Puzzle
So now let your mind wander to imagine yourself sitting in a clinic room, consulting with a white 49‐year‐old physiotherapist who works in a local public hospital and lives with her partner of 12 years. She is a keen mountain runner, who looks fit and healthy but describes 6 months of muscle cramps in her toes and calf after running for about 20 minutes. Symptoms disappear immediately on stopping and 4 weeks of physiotherapy has not helped. She also reports tingling in her lower legs and a feeling of …
Read the rest of the article here
This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properlycited.© 2024 The Author(s). Health Expectations published by John Wiley & Sons Ltd.1 of 4Health Expectations, 2024; 27:e14116https://doi.org/10.1111/hex.14116
Cruising
Having been to Antarctic a couple of years ago, Mr. Twitchy and I need to go to the other pole and are heading out to see the Arctic next week. We will be looking for polar bears and walruses this time, instead of penguins. Photos to come!!!
Have a great week!
Twitchy Woman 
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