Life isn’t just Parkinson’s

It started as one of those days in one of those weeks.

I’ve written before (to a whole lot of supportive comments), that sometimes we just need a pity party and that it is ok as long as we don’t let it go on too long or happen too often.

This has been one of those weeks and today started as one of those days.   Regular readers know that I was diagnosed with Parkinson’s and breast cancer; since I have the BRCA-2 gene mutation I am also at risk for pancreatic cancer (that’s what got my father).

This is the time of year for the annual MRI for breast cancer, an MRI of the pancreas and they both fell in the same week with a visit to my movement disorder specialist (whom I adore), capped off by a visit to the oncologist to learn the MRI results.  So today started as one of those days when you don’t feel like doing anything.  At all.   Where crawling into a cave seems like a wonderful idea.

But then . . .

I forced myself to do some cardio and felt the energy level tick up.  Then I took a deep breath (maybe even held my breath a little) and drove to see the oncologist.  And the results were . . . . all clear!  I can’t say my energy shot up, but the fog and the clouds drifted away fairly quickly.

The apathy is just about gone, which is definitely a blessing. I feel like I have my life back for another year. I know that some of you also go through this because of other illnesses that you have in addition to Parkinson’s. It is a tough to cope with more than one progressive illness at the same time. And even tougher if you don’t always get good news from your doctors. I admire your tenacity and determination to live the best life you can. However, you can allow yourself to have a pity party once in a while. You deserve it.

Odds and Ends

On October 7, the Parkinson’s Foundation will be celebrating its 10th anniversary in Los Angeles at its Moving Day Walk. I am proud to announce that Twitchy Woman (little old me) has been chosen as the honoree for the walk. Although I will be on vacation, I will still be there in spirit and will continue to raise funds for the organization that will be used to benefit people with Parkinson’s Disease living in the Los Angeles area. If you would like to join the team and walk on October 7, or would like to make a donation, please click here. I have raised my goal to $10,000. With your help, we can do it.


An Evening Reception with The Michael J. Fox Foundation

in Los Angeles on August 17, 2023
Time: 5 to 7 p.m. PT; check-in begins at 5 p.m.; remarks start at 6 p.m.
Venue: Marina del Rey Marriott (4100 Admiralty Way, Marina del Rey, CA, 90292) — Pacific Ballroom on the main floor

Space is limited! Registration is required.

Register Now

Look for us at the Twitchy Woman table. Come by and say hello.


New Twitchy Women Swag

We have a new design and new products that are now available year-round at my daughter’s new online store Sweet Poppy Lane

More items and colors available.


Have a great week!

3 responses to “Life isn’t just Parkinson’s”

  1. kiwipommysue Avatar

    I absolutely agree with you. Every now and then we certainly do need to have a bit of a ‘pity party’ I certainly do! Glad you got the all clear from your Oncologist. Like you say having Parkies should surely be enough for one person!

  2. Carl Lieberman Avatar
    Carl Lieberman

    Hi Sharon, wow what a week. So glad you made it through to the other side. I found your piece moving. I do not yet suffer from serious diseases, but there but for fortune could go any of us. Finding your energy and strength is inspiring.

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I’m Sharon

Welcome to Twitchy Woman.

I started Twitchy Woman as a way to exchange ideas and solutions with other whose lives have been affected. It has been recognized by Everyday Health, Healthline, Stanford University and more as one of the top Parkinson’s blogs to follow.

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