What does it feel like to have Parkinson’s revisited

May 7, 2022.  Another all time popular Twitchy Woman blog post, from April 2018

“Lately I switched Meds and it feels like I have brand new tires, rolling amused. A bit confused, but I’m going forward. With caution.”

During a conversation with a friend the other day, he suddenly asked me what it felt like to have Parkinsons. Do I have pain? What are my symptoms besides the tremor? I had to stop and think about how I can explain why the sleepless nights from PD are different than my husband’s sleepless nights. Why some symptoms could be a function of age, but are really part of PD. Then I tried to explain what internal tremors felt like. There is so much more I could have said, but I decided to just say that each person with PD has an entirely different trajectory and that I could not speak for others.When I got home I started thinking about the best way to approach the question of what it feels like to have PD is to ask other Parkies to tell me how it feels for them. I asked a number of my Parkie friends to answer the question. Here are some of their answers. I hope that this will give some insight into the many manifestations of PD, both physically and emotionally, whether or not you live with the disease.  As you read, you will start to see many commonalities in these statements, which I will talk about next week. 

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A Note To My Readers

I love to see your comments and get your emails as we share our collective experiences. But based on a couple of private questions from some of you, remember, I am just a lay person and a patient like the rest of you. For medical and similar advice, you need to talk to your own doctor

Twitchy Woman

Twitchy Women partners with the Parkinson’s Wellness Fund to ensure we have the resources to offer peer support for women with Parkinson’s.