Twitchy Woman: My Adventures with Parkinson's

2 responses to “Words of Wisdom from a 4 year old”

1. 

   Peter Willis

   August 22, 2019

   Dear Sharon,
   Just had the attached paper on Michael Wiese’s teaching style in his video linked to Goodbye Parkinson’s Hello Life (GPHL) accepted for publication in New Community an Australian social wellbeing journal from Melbourne, Victoria. It won’t be available in published form for some time but I wanted to get the attached draft copy to you to continue adding to the voices of resistant PD warriors in their vigorous or oblique forms. I notice you mention GPHL as helpful in its support for dancing as a way of holding back PD symptoms.

   Following my comment above, I am beginning to think that PD warriors can differ according to their personalities and styles. You and a few of your beloved friends (and pretty revved up, vigorous and ‘youngish’ battle ready warriors!!!!) seem to take a strong and active approach and report pretty good results. The ‘Buddhist’ style of Michael Wiese seems more oblique but no doubt helpful for those it helps the same way as your vigorous workouts with boxing and other strenuous exercises etc etc helps you and yours.

   Anyway the love and joy that crackles in your blog is pretty infectious. I laughed with joy when you had the chutzpa to post a film of yourself attempted a strong obstacle course across the water in the pool quite some months ago. I was not a little envious and then I remembered that you are a woman of action and considerable younger than your Australian admirer completing his 80th year in October. I then also remembered that you were not attempting to break a record or to beat other competitors. You, living vigorously with more than a decade of PD, want the taste of what seemed to be a peak wacky challenge purely for the fun of it.

   Perhaps this is where you and Michael’s ‘joyful, fun’ approaches seem closer than the ‘heroic’ acts of PD people engaging in endurance projects. The compassionate public awareness and generous research funds which they raise are tremendously helpful but for you and me with the condition and its degenerative potential, what we are working with is long term constant relatively small stuff but so helpful for us. You will see in the attached paper where I quote your ‘anecdotal report’ on the diminution of your friend’s symptoms once she got back into her vigorous exercise regime and your confidence that the same will happen to you when you are free from your current indispositions and rejoin her at the gym.
   You mention that you have felt an increase in the tremors in your ‘accelerator’ leg which are a manageable nuisance which you expect to limit when you return to your full fitness regime. Michael Weise as he works his way through his exercises that, coupled with the dancing that it leads to, has been so helpful, comes to one called arms flip flop and his tremor which had been virtually absent caught his right hand visibly. He was able to turn the tremor off by some compensatory action but it validates his point that the mindful dancing regime is not a cure but a way to live in the best way one can and to resist premature surrender.
   With love and admiration
   Peter

   Acting Director
   Australian Centre for Inclusive and Convivial Backyard Civilisation (ACI&CBC)
   10 Alexander Ave
   Millswood,
   SA 5034
   Mob: 0408 857 339

   Reply
   1. 

      skrischer

      September 10, 2019

      Hi Peter, so good to hear from you. Thanks as always for YOUR enthusiasm. What ever you attached was not there. Please send it to me at twitchywoman18@gmail.com. Sending you hugs from across the Pacific (can’t call it the Pond?)

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