Game of Parkinson’s

Game of Parkinson’s

With apologies to Game of Thrones

The back-to-back surgeries in the Twitchy household created an activity void that needed to be filled. And so, start-from-scratch binge-watching of Game of Thrones (GOT) filled the void. And that created two addicts; and the addicted need their fix. And so, when we arrived in S. Korea for a pre-World Parkinson’s Congress cruise, with the last episode having aired while we were flying, the FIRST THING we did on waking up at 5:00 am our first morning was to watch the episode we had arranged for our daughter’s friend to record, post and send us the link.

But the addiction has had other effects. I am now imagining/dreaming our collective battle against Parkinson In GOT terms. The ruler who kept the neurons in the brain functioning has died, and the battle is on to restore order. Who will win the right to sit on the Iron (Twitchy???) Throne? Ramsey Greyjoy makes us shake. The even more evil Cersei Lannister makes us writhe with diskinesias. Arya Stark fights the frozen faces. And Sansa Stark has the inner strength to endure the hidden symptoms that plague us. The sleepless night walkers are threatening to take over. Is Daenerys Targeryan making us hallucinate about dragons? And what is with Bran Stark and the third eye? Where is Jon Snow when we need him?

Ok, ok, we are not living in Westeros. There are not 7 Kingdoms in our brains fighting for the right to sit on the Iron Throne. However, there are so many different facets to PD that unfortunately cannot be controlled with just one treatment. So, like GOT, we need to find multiple solutions to make our lives better with Parkinson’s. Melisandre (the red priestess) is not going to bring back to life all our dead neurons. We need to make sure that our medications and treatments are working together to make us feel better. If they are not, then we need to find other options that do the job.

Are you a GOT fan? How does your experience with PD relate to GOT? I know its a stretch, but let’s have fun with it. Get a conversation going by replying in the comments. Who knows where it will lead…….

*If you are going to the WPC next week, come by my poster display (#649) on Wednesday from 11:30-1:30. I would love to meet you.

One response to “Game of Parkinson’s”

evolve physical therapy nyc

June 4, 2019

Hi Sharon, great way of presenting things!

I’m physical therapist from Evolve NY and all I can say is that positive thinking like yours is doing good to you and all that read your blogs.

We are having Community awareness RSB event for people living with PD today, so if someone is interested more info can be found here:
https://evolveny.com/blogposts/2019/6/3/evolve-physical-therapy-announces-parkinsons-disease-community-outreach-event-in-brooklyn-ny

Thank you!

Reply

I’m Sharon

Welcome to Twitchy Woman.

I started Twitchy Woman as a way to exchange ideas and solutions with other whose lives have been affected. It has been recognized by Everyday Health, Healthline, Stanford University and more as one of the top Parkinson’s blogs to follow.

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