Because it is World Parkinson's Day.... - Twitchy Woman: My Adventures with Parkinson's

Because it is World Parkinson’s Day….

There are many things I want to share with you.

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Yesterday, the first #ParkinsonsEve took place in Great Britain. I wish I could have attended, but going to Kyoto is a priority this year. However, those of us who stayed home will have an opportunity to watch at least some of the conference in the next few days. Stay tuned for the info on where you can watch it online. For more info go to parkinsonseve on Facebook.

Update 4/15 Click on the video to see all of the conference speakers:

This month, the Parkinson’s Foundation wants to know your 🔑 to living well with PD.

Whether you are living with PD, are a caregiver or a healthcare professional, tell us your tip. From managing freezing to sleeping and bathroom tips — no topic is off limits. Our hope is that others can replicate your tips and make their life just a little easier.

Click here: #KeyToPD to share yours.

My #KeyToPD: Finding new friends with PD who understand how you feel.

12 Things You Don’t Understand About Parkinson’s Unless You Have It

Are you familiar with the website The Mighty? I was not until contacted earlier this week by them to contribute a few quotes for 12 Things You Don’t Understand About Parkinson’s Unless You Have It, which was published today. The Mighty, according to their website, is a digital health community created to empower and connect people facing health challenges and disabilities. There is a Parkinson’s community on the website that you can subscribe to, and you can also share your stories, ask questions and connect with other Parkies.

Francesca ParkinsonsChampions Villa's photo.

And finally, there were problems with the survey that I sent out a few weeks ago asking how YOU are living well with Parkinson’s Disease. I want to thank the 139 people who completed the survey, but unfortunately, I will not be able to use the data.

I am going back to the questions as originally posted on Facebook.

Please list the top 3 things that help YOU to live well with Parkinson’s. Then the flip side – the top 3 things that are obstacles for you:
For example:
Positive: Exercise, Advocating for myself with my doctors, Friendships with other women with PD.
Negative: Poor sleep, Tremor gets in the way of doing things, Daytime fatigue

Click here to take the survey. Any answers sent by email will not be included in the final report. Please respond by April 22. Thank you in advance for helping out.

I’m Sharon

Welcome to Twitchy Woman.

I started Twitchy Woman as a way to exchange ideas and solutions with other whose lives have been affected. It has been recognized by Everyday Health, Healthline, Stanford University and more as one of the top Parkinson’s blogs to follow.

Feel free to explore the site – there are goodies on every page to help you live your best life with Parkinson’s Disease.

Twitchy Woman named to Top 50 Parkinson Influencer list

Thank you Feedspot for recognizing Twitchy Woman on this new list. Check it out here. Twitchy Woman is #44. I am amazed to be included with so many young onset people who actually know how to use Instagram and TikTok!

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Sunday Mornings with Twitchy Women

Sunday, April 12 @ 1:00 PM ET

Robert Cochrane, PhD introduces his film The Boys of Summer: Short Stop, followed by a discussion of the film

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Clinical Trials Corner

SEPTEMBER 2025

I’ve been hesitant to feature new clinical trials as a few that I had on my list to include in future columns have either been removed from the site or marked as withdrawn. Keeping my fingers crossed that the trials I feature continue to recruit and maintain their funding. Click here for the rest of the report from Jen

Thank You!

All Twitchy Women programs are free to all who participate. However, they are not without cost. It takes resources to continue our work and we cannot do it without your help. Through our partnership with the Parkinson’s Wellness Fund, those who want to provide support can do so. Thank you to all of you who have contributed. It is really appreciated.