I decided to let people know I have Parkinson’s to encourage others to take action. I was Diagnosed 3 and a half years ago, but my life is full. I act, I give talks, I do my podcast, which I love. If you get a diagnosis, keep moving!
Watching Alan Alda’s interview on CBS this morning was inspiring and uplifting. Mr. Alda could possibly be the best celebrity spokesperson, after Michael J Fox, for getting the word out that Parkinson’s is not a death sentence. In a 7 minute interview, he covered so much of what my fellow bloggers and I have been writing about, and the most important message he gave is to “keep moving.” I can’t repeat that message often enough, because it has worked so well for me and many other Parkies that I know, for the last 10 years.
Watch his inspiring video here:
Alda insisted that his doctor test him for Parkinson’s after reading an article about how one of the early signs of Parkinson’s is acting out dreams, which he was doing. One of his first symptoms a short time later was a twitch in his thumb. His reaction was not fear. He wanted to help his family understand the disease and stressed that each person with Parkinson’s experiences the disease differently, even from day to day.
He sees PD as a puzzle to be solved. You have to figure out the pieces of the puzzle that work for you to carry on a normal life. It is a challenge that you must meet and you have to find a way to approach it. He enjoys solving puzzles, something that I enjoy as well.
Alda approaches life with enthusiasm and hopefully will inspire others to do as he does: keep on moving. He boxes 3 times a week, plays tennis twice a week, and marches to Sousa music. He says that marching to music is very powerful for PD.
Most importantly, he wants to get the word out that Parkinson’s Disease should not be feared and that there are things you can do to live well with PD.
“… I think because I’m sort of well-known, it might be helpful to people to hear the message that there are things you can do. You can learn about things and not follow quackery, but find out what real science is coming up with. That helps. It helps to keep moving. It helps to move rhythmically,”
I hope that Mr. Alda will consider coming to the World Parkinson’s Congress next June in Kyoto. His message of hope is powerful and it needs to be shared with the Parkinson’s community and with the world.