In the beginning……

On top of the world at the Matterhorn On top of the world at the Matterhorn

Six years ago I was diagnosed with Parkinson’s Disease. Sort of. Six months before, in July 2008, I was pulled down by my dog who decided that the cat across the street was fair game. As I fell, I heard a horrendous snap, which was my fibula in my left leg. It had broken just above my ankle. So for the next six weeks, I was on crutches. Not long afterwards I noticed a small twitch in the toes of my right foot.

I thought that maybe I did some other damage when I fell, but it didn’t go away. A trip to my internist followed and he put me on Xanax to see if that would calm the twitch. Of course it didn’t and by January the twitch had moved on to my right hand.  My doctor sent me to a neurologist to see what was going on.

Three weeks prior I was diagnosed with Stage 1 Breast Cancer and was scheduled for a lumpectomy the next week. The neurologist put me through the usual tests: tap your toes, your heels, open and close your hands, touch his finger when he moved it, etc. He then declared that I had a Parkinson’s-like tremor. Huh? A Parkinson’s like tremor? What does that mean? He immediately put me on Requip with plans to gradually increase the dose over the next few months and sent me home. Long story short, I think he was trying to be gentle with the diagnosis because of the impending breast cancer surgery.

I stayed with him for about six months but still wasn’t getting any answers and was feeling worse from the Requip.  My internist then took me off of all of the meds and sent me to the Movement Disorders Clinic at UCLA. There I found the right doctor who confirmed that yes, I did have Parkinson’s, and sent me home with a lot of reading materials, websites to check out and a different medication. She also confirmed that some of the weird things I had been noticing even before the broken leg, were early signs of Parkinson’s. And even better, she is into yoga as therapy for Parkinson’s. I had been practicing yoga for about two years and I found it was good for reducing my tremors on the days that I went to class and I felt better all around on those days.

For the last six years I have found that knowledge and optimism are what gets me through each day. I have become a compulsive researcher on the internet. Recently, as a result, I have been getting calls and emails from friends about a relative or friend or coworker who was recently diagnosed and could that person call me. Writing this I hope that I can help others get through those first months when the diagnosis is still new and hasn’t quite settled in yet. I encourage your feedback, questions and comments so that this becomes more of a dialogue than just another blog.

So I invite you to join me on this journey into a new Normal for all of us.


4 responses to “In the beginning……”

  1. Sharon, from one Twitchy woman to another, thank you for sharing your story and inviting me to participate in your new blog. I’ve only been involved in a dry-eye blog/newsletter that I’ve found to be extremely informative as it has proven to uncover products and therapies not suggested by my medical docs. I’m looking forward to participating in this PD blog and discussing our new Normal. Thanks again and have PD (Pretty Darn) good day!

  2. Thanks Elyse. Check out the news I just posted. There is hope 🙂

  3. Hey Sharon, this is Alex Montaldo (Rock Steady Boxing NY/LA). I just wanted to tell you that we are very proud of you for being on top of your game! Lauren told me you’re doing great in class! Roberta, the other co-founder of our organization, has been conducting research on Parkinson’s disease for over 10 years now. She currently works in the neurosurgery department at NY Presbyterian Hospital. Feel free to call/email her anytime if you have questions (Lauren has her number). I’ll be back in LA in May for my work and will definitely come to class to have some fun with our West Coast fighters.
    Have a great day!!!!!!!!!!

  4. […] all of you, Twitchy Woman has passed 1000 viewers.  What started last March with a posting called In the Beginning that had just 15 views in the first month, Twitchy Woman now has at least 60 followers from many […]

Leave a Reply to Alex Montaldo Cancel reply

Please log in using one of these methods to post your comment: Logo

You are commenting using your account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

A Note To My Readers

I love to see your comments and get your emails as we share our collective experiences. But based on a couple of private questions from some of you, remember, I am just a lay person and a patient like the rest of you. For medical and similar advice, you need to talk to your own doctor

Twitchy Woman

Twitchy Women partners with the Parkinson’s Wellness Fund to ensure we have the resources to offer peer support for women with Parkinson’s.