My Books and Things I Like

These are a few of my favorite Parkinson’s reads:

Ending Parkinson’s Disease: A Prescription for Action 1st Edition

by Ray Dorsey MD (Author), Todd Sherer PhD (Author), Michael S. Okun MD  (Author), Bastiaan R. Bloem MD PhD

The new MUST READ book about Parkinson’s Disease for everyone with Parkinson’s and their care partners.


The Ribbon of Road Ahead:  One Woman’s Remarkable Journey with Parkinson’s Disease  by Carol Clupny.  Diagnosed with Parkinson’s at age 49, Carol was not ready to give up.  Instead, she embarked on long distance hiking trips, bike rides and more.  Join Carol as she takes you with her to France and Spain, Iowa bike trails, Oregon hikes and more, and even through her DBS surgery.   Her story is inspiring, and shows that determination and grit can help those of us with a chronic illness get through some of the more difficult times.

Perseverance: The Seven Skills You Need to Survive, Thrive, and Accomplish More Than You Ever Imagined

Perseverance: The Seven Skills You Need to Survive, Thrive, and Accomplish More Than You Ever Imagined by Tim Hague – Hague was diagnosed with  YOPD at age 46 and won Canada’s Amazing Race race with his son, Tim Jr., 3 years later.  The highlight of the book is his blow by blow account of the Race, which he (and his opponents) never expected to win.  Hague is truly inspirational in talking about how he lives his life to the fullest with PD. Listen to it if you can.  Whether or not you have Parkinson’s,  you will be inspired to live your best.

Parkinson’s? You’re kidding me, right?: One woman’s unshakeable belief in overcoming a shaky diagnosis!

Parkinson’s? You’re kidding me, right?: One woman’s unshakeable belief in overcoming a shaky diagnosis!  by Sheryl Jedlinski.  Jedlinski was one of the firstbloggers that I followed.  Always informative, humorous and a good read.  A great book for the newly diagnosed.

Brain Storms: The Race to Unlock the Mysteries of Parkinson's Disease

Brain Storms: The Race to Unlock the Mysteries of Parkinson’s Disease
by Jon Palfreman. Still my all time favorite.  After his own diagnosis with PD, Palfreman, an award winning science journalist, wrote this insightful book about the doctors, researchers, and patients  who continue to hunt for a cure for Parkinson’s Disease.  A must read for anyone with PD and their families.

Parkinson's Diva

Parkinson’s Diva by Dr. Maria de Leon.Fun, informative book for women with PD by Dr. Maria who was a Movement Disorders Specialist before she was diagnosed with YOPD.  We met three years ago at the Women & PD Initiative conference sponsored by the Parkinson’s Foundation and have become good friends.  Maria tells it like it is, with lots of humor along the way.  I challenge you to not laugh when you read about her experience after a massage. Available in Spanish

Her companion book is Parkinson’s Diva: Hello, Possibilities!

Natural Therapies for Parkinson’s Disease by Dr. Laurie Mischley. Dr. Mischley is a researcher at the forefront of alternative therapies for PD. Highly recommended.

Always Looking Up: The Adventures of an Incurable Optimist  by Michael J Fox     I recommend listening to this book if you can.  Fox is always inspirational and you can almost see the twinkle in his eye as he narrates the book.

Parkinson’s Treatment: 10 Secrets to a Happier Life: English Edition and  10 Breakthrough Therapies for Parkinson’s Disease: English Edition by Dr. Michael S. Okun    Two very good informative books written by the National Medical Director of the Parkinson’s Foundation.

Goodbye Parkinson’s, Hello life!: The Gyro-Kinetic Method for Eliminating Symptoms and Reclaiming Your Good Health by Alex Kertin.  Keep on moving through dance and more.

Shake, Rattle & Roll With It: Living and Laughing with Parkinson’s by Vikki Claflin.  Humorous stories about living with PD.

2 Weeks To A Younger Brain: An Innovative Program for a Better Memory and Sharper Mind  by Gary Small, MD

Evolution Cards by Kristie Scott

Other products I like:

Check out your DNA 23andMe DNA Test – Ancestry Personal Genetic Service – includes 150+ Ancestral Regions, DNA Relative Finder (Opt-in) & More

CHARMKING Compression Socks for Women & Men 15-20 mmHg is Best Graduated Athletic & Medical, Running, Flight, Travel

For comfort when flying, I highly recommend Vim & Vigr Compression Socks.  They come in fun colors and different levels of compression.  The most comfortable compression socks I have ever had.

Collapsible Walking Poles are great for travel, especially when walking on old cobblestones or hiking. I found these on Amazon. TrailBuddy Walking Poles – 2-pc Pack Collapsible Trekking or Hiking Sticks – Strong, Lightweight Aluminum 7075 – Quick Adjust Flip-Lock – Cork Grip, Padded Strap – Free Bag, Accessories (Beetle Red)

For itchy scalps, I found this amazing product which is better than what the dermatologist gave me.   Klorane Sos Serum with Peony for Sensitive and Irritated Scalp, 2.1 fl.oz.

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