Are you concerned about how changes in American Health Care will affect Parkinson’s?

Very important information from the Foxfeed Blog about upcoming health care changes.  If you do not already receive these emails from Fox, please sign up today so that you know what is happening with your health insurance.  It is very important that pre-existing conditions, such as Parkinson’s be included, as well as eliminating annual and lifetime caps on coverage.  Write or call your Senator and Congressperson and let them know how you feel about this.  If you don’t know how to contact them, go to the websites for  Congress and Senate

I have called and written my congressman in the past about supporting PD issues and even got a return phone call from the office saying that he was joining the Parkinson’s Coalition in congress, so they do listen.

I have recently read that phone calls are more effective than emails or petitions.  A friend posted this advice from a high-level staffer on Facebook and it makes sense.  Here it is with a few edits:

1. The best thing you can do to be heard and get your congressperson to pay attention is to have face-to-face time – if they have townhalls, go to them. Go to their local offices. If you’re in DC, try to find a way to go to an event of theirs. Go to the “mobile offices” that their staff hold periodically (all these times are located on each congressperson’s website). When you go, ask questions. A lot of them. And push for answers. The louder and more vocal and present you can be at those the better.

2. But, those in-person events don’t happen every day. So, the absolute most important thing that people should be doing every day is calling.
You can make 6 calls a day: 2 each (DC office and your local office) to your 2 Senators & your 1 Representative.
The staffer was very clear that any sort of online contact basically gets immediately ignored, and letters pretty much get thrown in the trash (unless you have a particularly strong emotional story – but even then it’s not worth the time it took you to craft that letter).

Calls are what all the congresspeople pay attention to. Every single day, the Senior Staff and the Senator get a report of the 3 most-called-about topics for that day at each of their offices (in DC and local offices), and exactly how many people said what about each of those topics. They’re also sorted by zip code and area code.

So, when you call:
A) When calling the DC office, ask for the Staff member in charge of whatever you’re calling about (“Hi, I’d like to speak with the staffer in charge of Healthcare, please”) – local offices won’t always have specific ones, but they might. If you get transferred to that person, awesome. If you don’t, that’s ok – ask for their name, and then just keep talking to whoever answered the phone. Don’t leave a message (unless the office doesn’t pick up at all – then you can…but it’s better to talk to the staffer who first answered than leave a message for the specific staffer in charge of your topic).
B) Give them your zip code. They won’t always ask for it, but make sure you give it to them, so they can mark it down. Extra points if you live in a zip code that traditionally votes for them, since they’ll want to make sure they get/keep your vote.

C) If you can make it personal, make it personal. “I voted for you in the last election and I’m am concerned about the changes in the Health Care laws…..

D) Be clear on what you want – “I’m disappointed that the Senator…” or “I want to thank the Senator for their vote on…” or “I want the Senator to know that voting in _____ way is the wrong decision for our state because…” Don’t leave any ambiguity.

F) They may get to know your voice/get sick of you – it doesn’t matter. The people answering the phones generally turn over every 6 weeks anyway, so even if they’re really sick of you, they’ll be gone in 6 weeks.

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I’m Sharon

Welcome to Twitchy Woman.

I started Twitchy Woman as a way to exchange ideas and solutions with other whose lives have been affected. It has been recognized by Everyday Health, Healthline, Stanford University and more as one of the top Parkinson’s blogs to follow.

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