A Few Good Blogs & Other Resources

The number of Parkinson’s Disease bloggers has grown exponentially since I was diagnosed in 2009. At the time, I could only find two – now there are over 200 that we know of and more popping up frequently.

In no particular order, here are some of the better blogs that I have found:

Parkinson’s Diva by Maria de Leon, M.D.

Journey with Parkinson’s by Frank Church, PhD, who is a Professor Emeritus in the Department of Pathology and Laboratory Medicine at the University of North Carolina at Chapel Hill (UNC-CH).  Very scholarly posts about Parkinson’s research and about living with the disease.

Mariette Robijn from the Netherlands offers her often humorous, offbeat posts

The Science of Parkinson’s by Simon Stott – well written, in language the average person can understand.

Parkinson’s Humor by Yuma Bev

It Is What It Is – Zen and Living with Parkinson’s Disease by Tom Eckhardt

A Soft Voice in a Noisy World by Karl Robb – diagnosed at 23, living with PD for over 30 years

Perky Parky by Allison Smith

Tomorrow Edition by Benjamin Stecher

Parking Suns by Bruce Ballard

Tikvah for Parkinson – Debbie Shapiro has created an all-purpose Parkinson’s Center in Jerusalem.

Kathleen Kiddo by Heather Kennedy

Tim Hague Winner of the Great Race Canada. Very inspirational

Parkinson Secrets Dr. Michael S. Okun, a world authority on PD, co-hosts a blog with Dr. Indu Subramanian with content from a rich variety of bloggers. They provide a forum for others “to inspire faith, plant the seed of hope, help patients to discover their core values, and to share ‘secrets’ that will improve lives…Hope leads to happiness, and happiness will lead to a meaningful life.”

a simple island life – Kai invites you to her lifestyle site where she shares about living well with Parkinson’s and embracing the everyday.

ParkyBoy ParkyBoy is about living with Parkinson’s: helping others with Parkinson’s by talking about it openly, to help make sense of things, and to allow me to express things that rattle around my head.

Who Stole My Dopamine – Emma Stubbs certainly gets the funniest blog award in my book. This young onset mother of teenagers shares her hilarious observations on life with PD

My Journey With Parkinson’s – This is from a newly diagnosed blogger from New Zealand.

Moving and Shaking – A relatively new blog by Andi Brown

Unshakable Hiker– Colleen Thomas loves to hike. Through her blog, she wants to create a community of people who love outdoor exercise and want to stay active despite a PD diagnosis. 

I’m Sharon

Welcome to Twitchy Woman.

I started Twitchy Woman as a way to exchange ideas and solutions with other whose lives have been affected. It has been recognized by Everyday Health, Healthline, Stanford University and more as one of the top Parkinson’s blogs to follow.

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Clinical Trials Corner

SEPTEMBER 2025

I’ve been hesitant to feature new clinical trials as a few that I had on my list to include in future columns have either been removed from the site or marked as withdrawn. Keeping my fingers crossed that the trials I feature continue to recruit and maintain their funding. Click here for the rest of the report from Jen


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