Here are some of my favorite books on Parkinson’s along with a few other items I have found helpful throughout my journey.
The soft-cover edition ofExquisite Warriors by Laura Russell
Order it here for $100.
Hot off the Press:
Parkinson’s: How to Reduce Symptoms through Exercise
Favorite Books
Perseverance
by Tim Hague
Hague was diagnosed with YOPD at age 46 and won Canada’s Amazing Race race with his son, Tim Jr., 3 years later. The highlight of the book is his blow by blow account of the Race, which he never expected to win.
Brain Storms
by Jon Palfreman
Still my all-time favorite. After his own diagnosis with PD, Palfreman, an award winning science journalist, wrote this insightful book about the doctors, researchers, and patients who continue to hunt for a cure for Parkinson’s Disease.
Ending Parkinson’s Disease
by Ray Dorsey MD, Todd Sherer PhD, Michael S. Okun MD Bastiaan R. Bloem MD PhD
The new MUST READ book about Parkinson’s Disease for everyone with Parkinson’s and their care partners.
The Ribbon of Road Ahead
by Carol Clupny
Diagnosed with Parkinson’s at age 49, Carol was not ready to give up. Instead, she embarked on long distance hiking trips, bike rides and more.
Living With Parkinson’s Disease
by Michael Okun MD, Irene A. Malaty MD, Wissam Deeb MD
Dr. Michael S. Okun, a leading expert in Parkinson’s Disease treatment. A good addition to add to your PD library.
No Time Like the Future
by Michael J. Fox
An instant New York Times best seller, this moving account of resilience, hope, fear and mortality, and how these things resonate in our lives, by actor and advocate Michael J. Fox.
Man’s Search for Meaning
by Viktor E Frankl
A book for finding purpose and strength in times of great despair, the international best-seller is still just as relevant today as when it was first published.
Rebound
by Brian Grant and Ric Bucher
Brian Grant and Ric Bucher tell the inspiring story about Grant’s rise to fame in the NBA and his battle with Parkinson’s Disease.
Not Just Sunglasses and Autographs
by Tommy Burke
Tommy Burke worked in Hollywood for over 30 years before being diagnosed with first Hodgkin’s Lymphoma and then Parkinson’s Disease.
Being Well With Chronic Illness
by Kat Hill & Nancy Peate
Being Well with Chronic Illness is a self-help guide for those with chronic illnesses looking to find a better path to wellness.
Natural Therapies for Parkinson’s Disease
by Dr. Laurie Mischley
Dr. Laurie Mischley is a researcher at the forefront of alternative therapies for Parkinson’s Disease. Highly recommended.
Alter Your Course: Parkinson’s – The Early Years
by Monique L Giroux MD , Sierra M Farris PA-C
Parkinson’s Diva
by Maria De Leon
A fun, informative book for women with PD by Dr. Maria de Leon who was a Movement Disorders Specialist before she was diagnosed with YOPD. Available in Spanish. Her companion book is Parkinson’s Diva: Hello, Possibilities!
A Soft Voice in a Noisy World
by Karl Robb
Karl Robb provides an assortment of tips and suggestions that have made a difference in his life and benefitted him in his personal struggle with PD. This guide shows how one man successfully navigated the medical gauntlet with the support of his wife and care partner, and found his answers, often in the unlikeliest of places.
Some of My Favorite Things
Bathtub and Shower Non-slip stickers
A fall in the shower is not a good thing. There are a lot of different non-slip stickers that will make your shower safer. Choose from whimisical patterns to transparent. From $5.99- $13.99 on Amazon.
Microwavable Heating Pad
For everything that aches!
Microwavable Heating Pad, Rice Bag, Rice Heating Pad, Cold Pack, Heat Pack, Daisy, Rainbow or Botanical, Handmade Gift, 2 Sizes Price:$16.95+
Lauren’s Hope Medical ID Bracelets
These stylish bracelets are engraved with your important medical information.
Vim & Vigr Compression Socks
For comfort when flying, I recommend these. They come in fun colors and different levels of compression.
$25.99
Back to Sleep
This was recommended by a doctor for those nights when you can’t get back to sleep. Only 1 mg melatonin so you don’t wake up with a melatonin headache!
Air Tags
A must have if you travel.
Also great for tracking anything you have a habit of losing, like your keys!
ACTIVATOR™ Poles from Urban Poling
These poles were designed by an occupational therapist & gerontologist specifically for rehab and long-term conditions.
$126.50
Trail Buddy Poles
$31.99
Evolution Cards
Kristie Scott (a Twitchy Woman mentor) shares with you her 53 whimsical and color charged evolution cards for your self-growth and pleasure.
$11.99
23andMe Ancestry + Traits
This at-home DNA test kit with access to 80+ personalized reports estimates your ancestry to the 0.1% across 2000+ geographic regions..
$99.00
Twitchy Woman is a participant in the Amazon Services LLC Associates and Urban Poling Associates programs and may earn compensation through links on this page.
Favorite Apps
My Moves Matter
My Moves Matter Digital Self-Care Companion helps you unlock the power of knowing what works for you so you can live your best life with Parkinson’s.
Pro-PD
From Laurie Mischley, ND. A fast, easy way to track patient reported outcomes associated with PD
StrivePD
StrivePD is a free iOS disease management application — FDA-cleared on the Apple Watch — that bpassively collects daily resting tremor and dyskinesia data via Apple’s Movement Disorder API. Explore interactive charts to track your symptoms over time and understand how medications and physical activity impact you.
You must be logged in to post a comment.