My Brain is Experiencing Technical Difficulties
seen on a t-shirt
After 10 years of writing about my “adventures” with Parkinson’s, I think it is time to change it to “My MIS-Adventures” with Parkinson’s. After all, everytime I travel, I find a way to do something to injure myself or someone else. At home, I bump into things that I swear were no where near me. I drop glasses, dishes and all sorts of things because my fingers just can’t hold on to things like they used to. And where did I put my keys?????
I fall asleep watching a tv show with Mr. Twitchy. The big problem is we both fall asleep at different times in the same show. Then we have to go back to see what each of us has missed. We might as well watch the whole thing over again and try to stay awake the entire time so we can both see what we missed the first time. And we still can’t find my keys…..
We get to the airport. Mr. T takes my carry-on suitcase and I have just my totebag or backpack, and a walking stick to worry about. I take out my phone to show my boarding pass at the TSA checkpoint. It won’t open. I get flustered. Mr. Twitchy asks me why I didn’t have it ready. “But I did.” I tell him. “And then my phone turned off because I didn’t refresh it and the boarding pass has disappeared.” Maybe it is with my keys somewhere…..
Going through security, I put my walking stick in a bin with my totebag. I ask the TSA agent if I should put it somewhere else. “No, just put it in the bin”. I get through the xray machine, pick up my bag and wait for Mr. Twitchy. “Where is your walking stick?” Oops, I forgot it. He runs back down to security and can’t find it. Now its my turn. I go back down to take another look. And there it was – the stick had fallen out of the bin and was stuck on the side of the rollers coming out of the xray machine, invisible to anyone who didn’t know what to look for. And my keys – well, they were in my purse the whole time, where they belong.
Coming this Sunday, June 1
Do you have a LRRK2 gene mutation for Parkinson’s?
If you think you might have a genetic form of PD? You won’t want to miss this presentation by Dr. Fatta Nahab, who will talk about a new trial named Neulark which is currently enrolling in the US. Neulark is a clinical trial designed to investigate whether NEU-411 can potentially slow disease progression and improve quality of life for people with a LRRK2-driven Parkinson’s disease.
Register here
Dr. Ray Dorsey and “The Parkinson’s Plan”
Thursday, July 10 at 3:00 PM ET, 12:00 PM PT
I am looking forward to hosting Dr. Ray Dorsey. who will be talking about his new book “The Parkinson’s Plan” at our July meeting. This is a follow up to the previous book “Ending Parkinson’s Disease” that he co-authored with Bas Bloem, MD, PhD, Michael Okun, MD and Todd Sherer PhD.
“The Parkinson’s Plan“ which was written with Michael Okun, MD, aims to give us the tools that are necessary to prevent, slow, and treat Parkinson’s. In the book, they introduce their four part plan to address the Parkinson’s pandemic.
- Prevent—We must prevent the preventable.
2. Learn—We must learn why people develop Parkinson’s disease.
3. Amplify—We must amplify the voices of patients and caregivers.
4. Navigate—We must navigate the frontier of new treatments.
You won’t want to miss learning about this important book and how you can be part of the Parkinson’s Plan.
The book will be out August 19 and is available for pre-sale on Amazon.
Yes, for the first time in 5 1/2 years, the meeting is on a Thursday instead of a Sunday. Yes, we will be recording it for those of you who can’t join us that day. So please make sure that you have the correct day and time written in your calendar so that you don’t miss it.
Register here
Have a great week!
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