April is Parkinson’s Awareness Month

Every 6 minutes, someone will be diagnosed with Parkinson’s disease (PD) in the U.S. This April for Parkinson’s Awareness Month, we want everyone to take 6 minutes to raise Parkinson’s awareness.

Parkinson’s Foundation

As the number of People with Parkinson’s continues to increase at an alarming rate, it is so important that we take the time this month to learn more about Parkinson’s Disease and reach out to others to educate them. There are many activities that you can participate in, so take 6 minutes or 6 hours and get out there and spread the word! Check out #Take6ForPD from the Parkinson’s Foundation for some great ideas.

April 11 is World Parkinson Day

Why April 11? James Parkinson, who wrote the first paper describing Parkinson’s Disease, was born on April 11, 1765 in Hoxton, just north of London. in 1817 he published the groundbreaking Essay on the Shaking Palsy, in which he described the motor symptoms which later became synomous with his name. To read more about James Parkinson read this article from the APDA.

Stand Up to PD Challenge

Join people all over the globe in raising awareness by participating in the Sit to Stand Challenge. Join with your exercise class, your friends, even your grandkids! Can we reach 1,000,000 sit to stands across the world? #standup2pd

For more information and to register, click here

Another big annual event on April 11, comes to us from PD Warrior in Australia. The 2023 Insight Into Parkinson’s is a great 3 day conference. The main conference is free to everyone. However, there are paid options which give you more privileges. Don’t worry, everything is recorded so that you can watch the sessions in your time zone.

What else can you do in April to spread awareness about Parkinson’s Disease?

First of all, educate yourself about Parkinson’s Disease. Whether you have PD or are a carepartner or concerned friend, take advantage of the courses offered by the different Parkinson’s organizations this month. Every one of them is offering extra programming.

Sign up to be in a study about Parkinson’s Disease. If being in a drug trial is not your thing, there are many other studies going on that you can participate in. Check with your doctor or local university to see if there is anything that may interest you. Several months ago, I participated in a Parkinson’s Disease Gait Study at UCLA. They called me back last month to invite me to participate in another study. This one is on Cued Movement. They are recruiting patients with Parkinson’s Disease and Healthy Adults for a brain mapping study. Information on both of these can be found here.

Join the movement to End Parkinson’s Disease. The National Plan to End Parkinson’s Act has been reintroduced in the U.S. House and Senate. The legislation aims to unite the federal government in a coordinated effort with the private sector to cure and prevent the neurodegenerative disease. Write to your congressperson to support this bill.

Bring it home

Have you spoken to your family and friends about living with Parkinson’s Disease? If not, maybe this is the right time to educate them about how you are feeling and how PD has affected your life. You do not need to go it alone. Make them an integral part of your support system for Parkinson’s.

Keeping up with all of the information coming at us this month can be exhausting and overwhelming. Set limits for yourself so that you do NOT spend hours and hours on the computer reading everything. It will still be there when April is over. Instead, spend time doing things you enjoy. Every one of those dopamine drops that we get when we are laughing and playing is precious. Get out and Sing or Dance. Join the #parkinsonsdanceparty on Instagram and have a good time!


One response to “April is Parkinson’s Awareness Month”

  1. Love the dancing. ‘Dance like no-one is watching you!’ but it is a joyous thing to dance and always lifts the spirits. You are such a positive influence on others with this condition and those that support them. Keep up your Blog. I know how important mine is to me and if we can touch the lives of one person with this condition or their supporters then we have made a worthwhile contribution.

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A Note To My Readers

I love to see your comments and get your emails as we share our collective experiences. But based on a couple of private questions from some of you, remember, I am just a lay person and a patient like the rest of you. For medical and similar advice, you need to talk to your own doctor

Twitchy Woman

Twitchy Women partners with the Parkinson’s Wellness Fund to ensure we have the resources to offer peer support for women with Parkinson’s.