With Gratitude

When I started counting my blessings, my whole life turned around

Willie Nelson

It has been almost 5 weeks since I had my encounter with a Chicago sidewalk which resulted in a fractured shoulder. I want to thank everyone who sent emails and cards wishing me a speedy recovery. It really meant a lot to me that you took the time to reach out to me. It shows the power of being part of a such a caring community.

As the weeks drag on, I continue to improve, but I am still quite limited in what I can do. I can’t raise my arm more than half way without pain. So no driving yet. I am still dependent on Mr. Twitchy for many things including chauffeur. He is a great sous chef; chopping and cutting for me while I cook complicated recipes out of boredom. He even tried to dry my hair a couple of times, which was rather comical. I could not get through this without him.

The worst thing is that I cannot exercise as much as I used to. I can ride a stationery bike and walk. That’s it for now. No yoga, tennis, boxing or any of the other activities I use to engage in. The perfect time for Parkinson’s to misbehave. It seems that as we get older, every injury takes longer to recover from. My mind thinks I am still 40, but the rest of me says otherwise. I start physical therapy next week which will hopefully get me back to what is my normal. Yay!

Hope and Gratitude

Cultivate a Grateful Mindset with Calm's Gratitude Check-in — Calm Blog
Calm blog

I just spoke to a newly diagonosed friend with PD, ‘J’, who talked about how important hope and gratitude are for her. You have to have hope to move forward with a chronic disease like Parkinson’s. J hopes that she will continue to do well with Parkinson’s. That she can do the things that she wants to do for many years and enjoy life. She also said that you have to have gratitude for the Parkinson’s community. The support from other people with PD is just as important because they understand what you are going through and can be a key part of your Parkinson’s team. They can be there for you when you have questions about anything related to PD. They can help you through the tough times and give you a boost when you need it. I hear this over and over when talking to newly diagnosed people. They are amazed by the friendliness and the warmth of the people in the Parkinson’s community.

J’s most important question is “How do I come out with Parkinson’s? I am still working and I don’t know how to tell my clients. Most of them don’t know anything about Parkinson’s. I don’t want them to think I can’t do the job.”

For me, it took abour 5 years to ‘come out.’ I was doing a lot of fundraising for several different groups and did a fair amount of public speaking. If I could stand behind a podium, I thought I could hide it. There were other times where there was no podium and my tremor was quite obvious. But I was in denial thinking no one noticed it. And I was so wrong. When I accidently posted something on my Facebook page that was meant for my Twitchy Woman page, the world did not come to an end. Think about it. I had already started to write my blog and I still had not made my diagnosis public!

So what am I hopeful for? After 13 years since diagnosis, I am still doing almost everything I was doing before. I am hopeful that I will continue do be able to do the things I want to do for many years to come. And I am grateful that I have an amazing community of people that I never would have met if I did not have Parkinson’s.


What are you grateful for since your Parkinson’s diagnosis? Please email us at twitchywoman18@gmail.com so that we can share it with the community. (let us know if you wish to remain anonymous)

I am going to take some time off of writing for a few weeks as I continue to recover. I will re-post some of my most popular blog posts until I come back.

With much gratitude for your support,

Sharon

6 thoughts on “With Gratitude

  1. Victoria Miller

    Sharon—so very sorry this happened to you. I do get it, believe me. BUT as you said already…I too am thankful for all the beautiful, wonderful human beings I have met. Also, I must say my doctors are also fabulous people.

    We are moving here…to a new house, and I am excited for that.

    Take it easy. Be kind and gracious to yourself.

    Ever hopeful, always optimistic,

    Victoria.

    Sent from my iPhone

    >

    Liked by 1 person

  2. Dear Sharon, What a positive and encouraging update. I loved your kind words for your spouse who is clearly a strength to you. Thank you also for your straightforward and very positive reflections on ‘hope’. God bless.

    Like

  3. Lou Eisenbrandt

    I am beginning my 20th year of living with Parkinson’s. I am most grateful that I am still able to navigate without devices, speak to interested groups about my life in 1969 and 70 as a nurse in the Vietnam war, share my stories in two books (“Vietnam Nurse: Mending and Remembering”and, newly published, “Unsteady as She Goes: Battling Parkinson’s after Vietnam.”) My life has slowed down but I am still doing some gardening, traveling, cooking, writing, and serving on the people with Parkinson’s advisory council of the Parkinson’s Foundation. Life is good!

    Liked by 1 person

  4. Roger Q. Fenn

    Hi twitchy Sharon, around 3 weeks ago I tripped and cracked several ribs on a sidewalk. I too have suspended active exercise, used a walker borrowed from a PD freind, now I can walk! but alas, my energy levels and biomechanics are greatly compromised and ripcage pains are difficult. My care-buddy is so special – I couldn’t say enoug for her non stop patience.
    Thanks for you inspirations
    Rog

    Like

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