Where has this year gone? 5 months after the big shut-down, we have become resigned to the fact that it may be a year or more before things get back to “normal” whatever that is. I still wake up most mornings and have to think about what day it is. The calendar is useless. Stress levels are up, my tremor is back, and I keep losing things. I know they are in the house. I haven’t gone anywhere, so they must be here. We have done a lot of binge TV watching and managed to watch all 5 seasons of Outlander in 5 weeks, a notable achievement. Or not.
And we Zoom and we Zoom. But never seem to get anywhere.
Mr. Twitchy did manage to fly to Sitka, Alaska yesterday for his annual fishing trip with his brother and nephews. I am so jealous, but not ready to get on an airplane yet.
Since I have nothing but time, you would think that maybe I would get a lot of things done around the house. Maybe, if you count making pickles out of all of those cucumbers from my jungle of a garden. I went through dozens of old photo boxes, getting rid of duplicates and bad pics, trying to arrange them, still not figuring out what to do with all of the sorted piles of photos sitting on my desk. But I still haven’t gotten back to playing the piano more than once a month, or working on my sketchbook journal about as often. There are a lot of things on my rainy day list that are still waiting for a rainy day. Here in Southern California, that is not likely until December. In the meantime, maybe I will contact some of the people in those pics who I haven’t spoken to in years. Or not.
However, there have been a few good things happening in Twitchy World.
Join us for a discussion about the book Ending Parkinson’s Disease
First, Sunday Mornings with Twitchy Women has really taken off. The programs have been varied, with speakers, exercise demos, Taiko drumming and more. Most of the programs are for women only, but on Sunday, August 23, the program is open to everyone. Ray Dorsey, MD., will be leading a discussion about the book Ending Parkinson’s Disease, which he co-authored with Todd Sherer, PhD, Michael S. Okun, MD and Bastiaan Bloem, MD, PhD. You will need to register here to join us on Zoom or look for it streaming on the Twitchy Woman FB page.
Even if you cannot join us, the book is a must read for people with Parkinson’s and their family members. You can order it today by clicking on the book (above)
For more information on our other events, go to http://www.twitchywoman.com/events.
You can participate in Parkinson’s research today – From Home!
I just did this today, at my desk. Now it’s your turn.
|What: The PARK study explores whether the use of web-based technology can measure day-to-day fluctuations in Parkinson’s symptoms — and distinguish individuals with Parkinson’s from those who do not have the disease. |
Who: English speaking individuals diagnosed with PD and those who do not have the disease. Participation is limited to individuals who reside outside of the European Union.
How: Participants complete a series of motor and voice tasks online, such as tapping fingers, opening and closing hands, and reading text aloud. While completing these tasks, participants are recorded by a webcam. Participants must have Google Chrome on their desktop or laptop.
Participants who complete all tasks receive a $10 Amazon gift card.
The PARK study is a collaborative effort conducted by Dr. Ehsan Hoque, Department of Computer Science, and Ray Dorsey, Department of Neurology. Learn More