“Float like a butterfly, sting like a bee. The hands can’t hit what the eyes can’t see.”Muhammad Ali
“Float like a butterfly, sting like a bee. The hands can’t hit what the eyes can’t see.”Muhammad Ali
My eyes are filled with tears. One, because along with so many others, I’m mourning the loss of Muhammad Ali — a real fighter and PD role model. I am also honored and grateful that I have the opportunity to attend the top-rated MAPC, But this entry truly got my attention because your detailed description of “riding the storm” is eerily something that I can so personally relate to. Most recently…I spent Memorial Day in ER diagnosed with DVT–deep vein thrombosis. I think my symptoms began following a bout with a respiratory flu that really dragged me down for a few weeks. Those lasting symptoms prompted my questions: “Is this the PD “fatigue” they talk about?! Uh oh, are my legs experiencing PD rigidity? Does it happen that quickly–practically overnight? ” Confusion, anxiety, fear and stress start to dominater while trying to “ride out the storm.” And really, how many complaints can my dear husband tolerate?? BTW, during my stay they also indicated that I had lesions on my liver and nodules in my lungs which clearly are unrelated to PD. My response to the Doc. “Hey only one to a customer!” I especially dislike when experiencing symptom(s), such as the burning, sharp and dull pains attacking my stomach, many often attribute it to…”It’s your PD and/or meds. This is one tough nut to crack and that’s why it’s vital that we stay strong, count on faith, remain positive, be kind to ourselves and dig deep for that sense of humor. God Bless!
Amen!!
Best, Barbara M Rubin Sent from my iPhone
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I always follow your blog and wanted you to know that this post resonated with me. I am going to try and develop some grit! Thanks
Your welcome! I am glad you enjoyed it.
Sharon, as usual you have put your feelings into words. You might also enjoy Ali”s 30 famous quotes that I posted on Google+. More than one also applies to your journey with PD. Love, Marty
As usual, beautifully expressed with frankness, honesty and truth. YOUR truth. You have a lot of grit, girl. Thinking of you. Linda in Bloody Hot Tucson.
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Extended til this Friday, April 19
After Friday, you can’t get these great t-shirts again until December.
So what are you waiting for? Order yours today here.
A new book by super Parkinson’s Advocate George Ackerman
Just out “A Son’s Journey from Parkinson’s DIsease Caregiver to Advocate. I am looking forward to reading this new book today.
Sunday May 19, 2024
Maureen and Trent will talk about Ping Pong for Good – a program for people with PD.
If you live in Los Angeles and want to participate in the live Ping Pong demo, please contact Sharon for details.
Click here to register.
This program is open to everyone.
Want to practice Ping Pong at home but don’t have room for a Ping Pong table?Click on the image to learn more.
The University of Rochester and Dr. Ray Dorsey have an interesting new clinical trial in which you participate from the comfort of your own home, doesn’t involve changes to your current meds, and you can earn $500.00! All interactions with the medical team will be via Zoom and phone.
Read more here
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