While browsing my Facebook feed, I came across the following post from the Michael J Fox Foundation: Find out if you may be eligible to participate in a clinical study investigating the link between Ashkenazi ancestry and Parkinson’s. The Parkinson’s Progression Markers Initiative (PPMI) is The Michael J. Fox Foundation’s flagship biomarkers study seeking to learn more about the genetics of Parkinson’s disease. PPMI is currently studying the connection between PD and having a mutation in either the LRRK2 or GBA gene — both are promising targets of PD research. https://www.michaeljfox.org/page.html?ppmi-genetics I have participated in a number of clinical studies for both PD and Breast Cancer.  I encourage you to participate as well.  Most studies have trouble recruiting enough people to actually do the study, even if they are fully funded.  If you have not already done so, sign up for Fox Trial Finder so that you can take an active part in finding a cure for PD. In addition, please go to the 23 and Me website and sign up to be tested.  There is no charge for the kit if you sign up for the PD research study.  Here is the link:  https://www.23andme.com/pd/ They do not give you medical information..  Privacy is very important, and you have to sign a release for the company to share your results with researchers.  They do give you your Ancestry composition.  Mine, as expected, was 97.8% Ashkenazi.  The surprising part was the 2.8% Neanderthal!!!

WATCH: The Parkinson’s Minute on PD Genetics

2 responses to “Is there a link between Ashkenazi Jews and Parkinson’s?”

  1. PDinAZ Avatar
    PDinAZ

    I am of that heritage and getting tested was the first study I participated in. It was easy and educational. However, I do not carry the mutated gene. Secretly, I was hoping to have it as a reason behind my PD. BTW, those who do not have PD but are from Eastern European decent may be tested as well. I am currently in 2 web-based studies–Fox Insight (monitors your health, changes, etc.) and will be using a wearable device to track meds, movement, etc. for at least 6 weeks. The other study focuses on CAM Care in PD–complimentary & alternative medicine. It’s the least I can do!

    1. skrischer Avatar

      I don’t have the mutated gene either. And I am in the CAM study, too. I just got a notice about The Women in PD Initiative, which sponsored by the Parkinson’s Disease Foundation. They are having a conference in NJ in September. I will send you info about it.

Leave a reply to PDinAZ Cancel reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

I’m Sharon

Welcome to Twitchy Woman.

I started Twitchy Woman as a way to exchange ideas and solutions with other whose lives have been affected. It has been recognized by Everyday Health, Healthline, Stanford University and more as one of the top Parkinson’s blogs to follow. Each month I host a free Zoom webinar exclusively for other “Twitchy Women” with Parkinson’s Disease.

Feel free to explore the site – there are goodies on every page to help you live your best life with Parkinson’s Disease.

Let’s connect

Twitchy Woman T-shirt Sale

Ending tonite, April 19 at 12:00 AM ET

After today, you can’t get these great t-shirts again until December.

So what are you waiting for? Click here to order yours NOW!

A Son’s Journey

A new book by super Parkinson’s Advocate George Ackerman

Just out “A Son’s Journey from Parkinson’s DIsease Caregiver to Advocate. I am looking forward to reading this new book today.

Recent Posts

Sunday Mornings with Twitchy Woman

Sunday May 19, 2024

Time for Ping Pong!

Maureen and Trent will talk about Ping Pong for Good – a program for people with PD.

If you live in Los Angeles and want to participate in the live Ping Pong demo, please contact Sharon for details.

Click here to register.

This program is open to everyone.

Want to practice Ping Pong at home but don’t have room for a Ping Pong table?Click on the image to learn more.

Clinical Trials Corner

LIGHTPD

The University of Rochester and Dr. Ray Dorsey have an interesting new clinical trial in which you participate from the comfort of your own home, doesn’t involve changes to your current meds, and you can earn $500.00!  All interactions with the medical  team will be via Zoom and phone. 

Read more here